Remember to breath
Today has been a day to remind myself to breath. Hubby called cable company ripping us off *(again) He gets too upset when dealing with them, so he brought the bills in (cable/phone/net) took me 55 mins on the phone but got it straighten out. It made me feel good to help hubby for a change, he is always doing everything for me.
Frustrated about my wheelchair. It is taking forever for them to customize it. The base of my chair is from one company who has the tie-downs (the hooks you need to take the access bus) on the bottom of the seat, my seat is from another company that has the tie-downs on the base. So I do not have tie-downs. I can not take the access bus or any other vehicle. Now that we have snow I am stuck at the hospital. I phoned my vender and was told he is talking to my OT. We have program here that pays for the chair but you have to meet certain requirements. I feel like screaming. They have been trying to fix this chair since feb. It hurts me, nothing seams to fit me.
We came up with a list of things that needed to be done, and less then half of them were done. It feels like they are dragging their feet.
But remember to breath.......
It seems that I am learning to advocate for myself. I am getting chemo tues. My MS doc wanted a urin sample sent off to make sure I do not have an infection as it can get out of control once you get chemo. My doc here forgot to order it, I got that done breath..... today I asked and it was ordered so I ask my nurse but it was crazy around here today. Got new urin drain bag took the sample myself. Waited as long as I could as it needed to be to the lab today, it takes 48 hrs for them to run it. When only 30 min's remained before the lab closed I took it to the nurses station good thing to. I explained to the one nurse if it was not done today I would not get chemo she told me nurse she was going to take it down my nurse told her she would send it down after her break. No one told my nurse why we were needing it done. Breath..... I did not get mad I just made sure my needs were taken care of.
My theripist told me awhile ago I mattered, and my needs and health problems were just as important as anyone elses. So today I took charge and made sure things were done.
Tonight had great time with Hubby. He came in and we listen to music and talked. He seems to believe that I am getting better, he has taken a breath. It is good to be on the road to getting better instead of being stuck in the ditch with water rushing in. He was sure I was going to stop breathing, before the chemo I was going to it was just a matter of time. It is good to be reclaiming my life back.
Met for goals with a team member, need to come up with schedule for when I go home. Need to do something everyday, to get out of the house. I want to feel like I am doing something so I am going to walk the dog and do some of the food shopping. That will help Bruce and not overwhelm me. I do not know how to keep busy so I do not end up in the rut I was in and not over do things. I am suppost to be kind to myself and rest when I need it. Some how I need to balence both. Got to give that some more thought.
Frustrated about my wheelchair. It is taking forever for them to customize it. The base of my chair is from one company who has the tie-downs (the hooks you need to take the access bus) on the bottom of the seat, my seat is from another company that has the tie-downs on the base. So I do not have tie-downs. I can not take the access bus or any other vehicle. Now that we have snow I am stuck at the hospital. I phoned my vender and was told he is talking to my OT. We have program here that pays for the chair but you have to meet certain requirements. I feel like screaming. They have been trying to fix this chair since feb. It hurts me, nothing seams to fit me.
We came up with a list of things that needed to be done, and less then half of them were done. It feels like they are dragging their feet.
But remember to breath.......
It seems that I am learning to advocate for myself. I am getting chemo tues. My MS doc wanted a urin sample sent off to make sure I do not have an infection as it can get out of control once you get chemo. My doc here forgot to order it, I got that done breath..... today I asked and it was ordered so I ask my nurse but it was crazy around here today. Got new urin drain bag took the sample myself. Waited as long as I could as it needed to be to the lab today, it takes 48 hrs for them to run it. When only 30 min's remained before the lab closed I took it to the nurses station good thing to. I explained to the one nurse if it was not done today I would not get chemo she told me nurse she was going to take it down my nurse told her she would send it down after her break. No one told my nurse why we were needing it done. Breath..... I did not get mad I just made sure my needs were taken care of.
My theripist told me awhile ago I mattered, and my needs and health problems were just as important as anyone elses. So today I took charge and made sure things were done.
Tonight had great time with Hubby. He came in and we listen to music and talked. He seems to believe that I am getting better, he has taken a breath. It is good to be on the road to getting better instead of being stuck in the ditch with water rushing in. He was sure I was going to stop breathing, before the chemo I was going to it was just a matter of time. It is good to be reclaiming my life back.
Met for goals with a team member, need to come up with schedule for when I go home. Need to do something everyday, to get out of the house. I want to feel like I am doing something so I am going to walk the dog and do some of the food shopping. That will help Bruce and not overwhelm me. I do not know how to keep busy so I do not end up in the rut I was in and not over do things. I am suppost to be kind to myself and rest when I need it. Some how I need to balence both. Got to give that some more thought.
Replies
Kayce,
I know you can do all this and more, you are one of the strongest people I know and you know you give me inspiration and hope and pray I will be as strong as you one day. I\'ll always be here for you and will pray every day for you. I know you will do everything you set out to do.
Take Care
Dave
When you think about it, your goals are the same ones we all need to have. We need to stay balanced, involved and positive. That will mean different things to each of us depending on where we are in the stream of our disease but we can do it with careful thought and you are living proof of that. I have every confidence that you will be home and not just home on the couch as before. Gentle hugs. Linda