one month in........flares suck

i know, where IS that positive spirit when i need it?  best bet is to spring for wry humor at times like this.


a had to day.....had to call the rheumatologist to make an appt.  had to call the dentist and the hygenist to make two appts.  had to get prescriptions in the hopper so i don't run out, had to make appt with doc richard for early october.  had to ....... i'm the captain of this little sparrow cottage ship.  gotta do even when ya don't wanna. 


i couldn't stop yawning, my eyes were tearing up.....the right side of my mouth is leaking (i know so unsexy, but the slight bell's palsy acts up during flares).  achy, crappy, yucky not sleeping well ......yup, that's me.  i don't feel like me.  i don't feel like you either........mostly i feel consused, exhausted, ridiculously exhausted.


but if i'm complaining, sitting up and typing then i'm doing well enough to vent......that IS a good sign around here.


i didn't go to the cooking demo, i didn't make it to senior lunch at midway today......i called to cancel saturday plans with deb ....we were gonna go to the dogwood festival in statham, ga.  never been, thought it was high time to go......maybe next year? 


next week is something else i probably won't get to do........gotta push to go see doc elliott(tues/sept 18th@1:45)


wednesday is OWLS Game Party Day at 2:30.  Bingo, other games, prizes and appetisers!  big fun --- prolly too sick to go. 


friday is dentist time......sept 21st@2pm.  getting fitted for the dadblamed apparatus thingy.  oh goooooooody.  do not clap for this, this is not happy.....just expensive and a big pain in the mouth kind of deal.  fake toothery.....a partial bridge, but not in NY or anywhere fun.  bah!  i need to get over it and be grateful already, enough whining!


contacted doc richard's office for script refills, and to request an appt in early OCT.  done!  good.


Crystal says meds should arrive on or before September 21st.  yay.


Deep teeth cleaning on Friday, Sept 28th at 1:30.  told they have some sort of bite locks that can allow my mouth to remain open during cleaning if needed........told the lady bite locks sound like something used to catch wild animals......she laughed and shared that she is going to Disney in Orlando beginning that day for her birthday.  with her best friend and they are taking their kids.  i wannnnnnnna do that.......me no wanna have a party for cleaning the interior of my mouth.  shheeeeez, can we all agree that my social life has left the building?


on the plus side, last night i watched tv sitting on my pretty new sofa, how about a picture from the stores website:  hang on......


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it's called the blake sofa in indigo blue......it's very very soft.  a good comfy seating area for chronic pain kids.  i am renaming it "the my sofa", who is blake anyway?  he paid nothing, i paid for the entire couch, including the ugly print on those pillows.  they are not y style.  so hey.........

 

i put my existing pillows on the sofa.......two flowery lady pillows, two sparkly green pillows and a pretty green throw.  i have a garden cottage thing happening up in here.  walls are pale gray, floors - a light wood.....a tall cabinet with french doors in a pretty dark blue green......a round side table with cabriolet legs next to the blue ($75) thift find in perfect condition leather chair with ottoman.  added $20 worth of taller legs so i never get trapped in chair prison.........  a padded coffee table bench and an entry way table both with cabriolet legs.......a tiny white side table to hold drinks.....books, a carved wooden elephant and a very curious kitten named mia.

 

there are two blankets on the ottoman for chilly me, another throw on the padded bench for cause it's pretty, cause i like it and cause i've learned to have throws in close proximity to me everywhere cause when i is tired i shlump over and can't always rise to get something to get me warm.  it's been a long flarey crashy sucky month.  time to go back to bed.

 

miss people.  are they still out there walking on two legs?  is their life beyond this foggy confusion.  when i woke up today i didn't know .....the day, the time of day.......was it dinner time?  about to be nightfall.......what was going on?  did it matter......my head was pounding and i was so nauseous.  just now united health care called with an automated message to tell me to get my meds cause a hurricane is coming.  is that why the barometric pressure goons are standing on my sinuses and the back of my tiny little pain infested head????????????? the only thing to help is sleep. so let me sleep then til the quiet brain arrives. 

 

turns out it was mid morning of the next day.......took me another two hours to scramble eggs.  oh my lanta.  think the flare is getting worse.......rest little girl rest...........shhhhhhh.  her is all tuckered out.  nigh night!

 

love, hugs and commiserations for flares everywhere.........moi. 

Replies

KneeDeep
KneeDeep

Your sofa looks so nice and glad it is comfy. especially now when you are in a flare. Rio I hope is giving you a good snuggle and Mia keeping you both entertained with her Kitten Ninja Antics.

Sorry, you are going to miss all your gatherings, but you have to take good care of yourself so that you can feel better.

Glad you have got your appointments set up and to do's done. I got a few to do's coming up soon too. Not looking forward to it but will do it.

I am right here in spirit with you Serce. Love/Blessings