New Hope
Well, today is a better day. I am quite stiff, but I actually got a decent nights sleep. That sure helps. I only got up twice to use the restroom and it was 5 hours apart. Usually it is every 1 1/2 - 2 hours apart. And it has been almost two weeks since the last Rutoxan infusion, so my energy is better. My doctor also said I will notice a reduction in my symptoms over the next few months. And I should be feeling the best three months out from this date. That was good to hear. I was discouraged by how terrible I felt and my symptoms were still more severe. I guess in studies 58% of the people had a reduction in the amount of lesions on the nerves. It wipes out B cells. Then every 6-12 months you have another infusion. I am looking forward to seeing how it works for me. And to not take Avonex is great.
Replies
I\'m so happy for you that you get to try Rituxan. My neuro just barely suggested this one to me, for me to consider. Unfortunately, I have been battling c diff since last June and my infectious disease dr said absolutely not for the Rituxan for me right now:( Because it kills the B cells, they are the ones I need to fight the c diff. I am in a rock and a hard place, err.
I\'m excited for you and I\'m also looking forward to seeing how it works for you!! What appealed to me about it was getting the infusion once a week for four weeks, then nothing for at least six months... Nice! Do you know the mg dosage you are/were getting once a week? I\'m just curious.
Yay for you not having to get up for the restroom as often! Ah... The little things in life are not so little:)
Ahhhh. A good night\'s sleep can make all the difference. So glad you are doing better and should be doing great in 3 months. Just in time for Spring. Sounds like a plan!
Gentle hugs, Linda