"Momofnatasha" Says What HELPS, and what doesn't

OH dear, another aching heart... a mom who lost her beautiful daughter to cancer. Seems sooo senseless. I share her brilliant thoughts here:
 
8 Months After Losing My Child to Cancer: 5 things that help; 4 that don't


By: momofnatasha and Melanie Mayo

Posted 8/19/13 • Last updated yesterday • 7624 views • 12 comments


By Suzanne Leigh
 

What helps:
 
1. When I hear her name. My daughter’s name is Natasha; I love hearing people say her name; I wish they’d say it more often. I love seeing her name on her possessions, including (inexplicably) her medications that we continue to hoard. I even like seeing new spam sneak into her inbox, or junk mail addressed to her in our mailbox. Recently a former classmate recognized me at the pool where my younger daughter was taking classes. “Are you Natasha’s mother?” Those words made my soul sing. Her name: Thank you! Reference to me as her mother: Thank you! Use of present tense: Yes, I am Natasha’s mother –- always will be. Thank you.
 
2. When people acknowledge her life. A Christmas gift and birthday card for Natasha that were sent after her passing gave us a brief burst of joy; they validated our drive as grieving parents to keep at least part of her alive. But both senders were almost apoplectic with regret: they were so sorry, it had been a ghastly mistake! Why is it that people think that if they act like our daughter is still with us, we will be terribly insulted? Did they think that we’d forgotten that we'd had a daughter who had died and that the card and gift would be unpleasant reminders?
 
3. Hearing, "You’ll never get over it,” from my bereaved aunt who lost her teen son in an auto accident many years ago. That assertion rings true to us and it gives us peace. Conversely, non-bereaved parents seem to cling to the conviction that we will get over it.
 
4. Other parents who have lost a child to cancer. We speak the same language: CT scans, MRIs, CBCs, IVs, chemo, radiation, "artificial nutrition" ... It takes a cancer parent to understand the turmoil invoked with each of those words. Bereaved parents don’t respond with panic when they see us cry — something that shocks many people, especially if a father is crying. Bereaved parents know that tears don’t mean we’re having an unusually rough day, any more than laughter means we’re having a good day. Crying is just something bereaved parents do –- possibly every day and possibly copiously. Bereaved parents get it. Tissues over here, please.
 
5. Hearing from people who read my blog. Thank you to everyone who has shared their own stories with me, either privately or on this blog. Writing about Natasha is my therapy; thank you for reading it.
 
What doesn’t help:
 
1. Anti-depressants. Disclosure: I’ve never taken them. Would I be open to taking them? Perhaps and I certainly see their benefit for some types of mental illness. But child loss is not an illness. I think I feel exactly the way any bereaved mother who loves her child should feel: desperate grief. Prozac et al are off the table, at least for now.
 
2. Therapy. I haven’t closed the door to it (yet) but I’ve never met a bereaved parent who claims to have been helped by it. I’m open to hearing other opinions.
 
3. Celebrations, vacations, barbecues, “girls nights out,” your child’s graduation, bridal showers, baby showers. I can’t do any of them. Sorry. Thank you for inviting me, though.
 
4. Playing “at least she wasn’t.” My daughter wasn’t abducted and strangled at knifepoint by a psychopath; she didn’t die suddenly in a head on collision caused by a drunk driver; or on a ventilator after months in the ICU. She died at home in the arms of her family. She knew that she was loved and that we had tried to protect her every day of her life. This I don’t doubt. I’ve played the “at least she wasn’t …” game with myself and other bereaved parents and it doesn’t work. The truth is that there is no good way for a 12-year-old to die. And if I’d have gotten the chance to pick, I wouldn’t have picked the cancer card: the operations when her surgeon drilled through her skull to get to that vicious tumor, the fruitless cycles of chemo and futile irradiation of her entire brain and spine. There is no “at least she wasn’t.” Its dreadfulness is insurmountable.
 

Replies

mummar
mummar

OMG - that was brilliant. \" At least she wasn\'t...\" There is no \" good \" death - but I too would never have picked the cancer card. The pain, the chemo, radiation, the trying to keep positive knowing the likely outcome - it breaks my heart how David had to suffer so, physically and mentally. I could rationalize his suffering if he had made it, as a necessary evil if you will - but with his death I just cannot, still.
forhim1122
forhim1122

I lost my son to brain cancer just 23 months ago and shamelessly cried as I read your journal. Yes, yes and absolutely spot on. My son Seth and your daughter Natasha, and Mummar\'s son David, all lost to that hideous cancer card. There\'s no relief in the pain of the loss and in the frustration of that downward spiral. Hugs for sure, for your truth which I share. Patti
NellW
NellW

This was an amazing journal. I connected to everything that was listed. We lost our beautiful son, Jeff, to colon cancer. It was a horrible and painful for our beautiful son. Like mummar stated above we might could have rationalized the suffering if he had made it, as a necessary evil but I also say with Jeff\'s death I still cannot rationalize it. Every point in the journal was right on. I am going to copy and paste this so I can save it for some of my \"friends\" that haven\'t lost a child and really don\'t have a clue.
I know some of them mean well but most of them just think \"I should be over Jeff\'s death by now\". Thanks again for sharing.
Nell
jmk1973
jmk1973

I lost my only son, to a massive heart attack. He had had strokes and a previous heart attack, but I was living in denial, that he might actually die. Especially, before I did. The shock and pain are unbelievable.
Almost eight years ago, I lost my husband of 33 yrs. to esophageal cancer, that matastisized and went all over his body. This was after chemo and radiation. Cancer is a horror for the patient and the family. It just seems so much more cruel, when it is a child. I am so sorry for your loss....

(((HUGS)))...Julia
RememberKala
RememberKala

LOVE THIS!

NATASHA! NATASHA! NATASHA!

KALA! KALA! KALA!

My love and prayers for Natasha\'s family and friends~~
biowoman
biowoman

There is no easy way to lose a child. Bless this mom for putting to words what she knows....
NoraMc
NoraMc

#3 of what doesn\'t help....... so speaks for me,,,I need others to know this one!!!!
Livingjuicy
Livingjuicy

This is where the loneliness it eased a bit for me. Just knowing that others are experiencing and feeling the same kinds of things that I am helps me know that I do not suffer from a disease, yet from a broken heart that is healing ever so slowly and in its own time... not \"my\" time.

These kinds of things need to be read by ALL because truly, I was one of those clueless people too in so many ways before I experienced the loss of Douglas. Not a total \"neanderthal\" yet pretty close. Deepest of sighs...

What a beautiful daughter, Natasha IS with her beloved fur baby. I totally get her \"at least she wasn\'t...\" She\'s right... It doesn\'t matter because the dreadfulness is insurmountable.

Thank you for sharing, Sarah. Always I look for anything that speaks to your heart as I am assured it will speak to mine as well.

Much love and gratitude,
XO Joanie
Missinglisa
Missinglisa

There is no good way to lose a child. Grief and tears are so normal; and I do love to hear Lisa\'s name. I crave it some times.
We all cope with our grief differently so I would not rule out therapy or antidepressants.
Thank you Natasha\'s mom and thank you Sarah for sharing.
Hugs, Marlene
Love and hugs,
Marlene
heartsandhands
heartsandhands

I agree with you all. And as my hub Drew pointed out to me last night after he read it and agreed with most of the points: I HAVE gotten more comfortable with other people\'s celebrations and life events, with time. In the first year, where Natasha\'s sweet mother still is, it was not possible to enjoy other people\'s celebrations. God knows I tried.

KALA! KALA! ANDY! ANDY! NATASHA! NATASHA! Teri you nailed that one a long time ago and it spoke to me from the beginning. Right on sister!!! : )

Much love to you all.
S.
ter1
ter1

I do think that anti-depressants helped me. I wasn\'t able to function -- lost a lot of weight from anxiety -- and couldn\'t go on feeling the way I did. I started on two anti-depressants about 6 months after Jason died and they helped me -- Having a child die is not an illness and grieving is what we need to do, but if an anti-depressant can help you get through the day and relieve some of the anxiety, then I think it\'s fine. Just last month I stopped taking one of the meds.-- it\'s been 28 months now since Jason passed. I have no plans to stop the other one and the doctor agrees with me.

I also think that if you are able to find the write counselor talk therapy can be beneficial. Talking brings to the surface the emotions that need to be let out. Knowing that someone is listening and not judging can help a great deal. That\'s a large part of what we do hear on FMO.

As for celebrations and vacations, for me it was and has been important for me to be with family. I remember celebrating my other Son\'s birthday only 2 months after Jason\'s passing and that wasn\'t easy -- but now I truly enjoy family gatherings.

So I guess my point is everyone is different and everyone grieves differently, but yes Teri definitely got it right about saying our children\'s name......
KALA, ANDY, NATASHA, JASON, LISA, DOUGLAS, MORGAN, DEAN, JEFF, DAVID, SETH
AND ALL THE OTHER ANGELS OF FMO.

Big Tight Hugs,
Terry
Reunion
Reunion

Everyone\'s grieving and \"what helps\" can be soooo different! Much of what she wrote resonated with me. BUT...when I read #3 of \"What Helps\"... I was shocked! That was, for me, the absolute worst thing I wanted to hear, as the years without my children loomed ominously long, ahead of me...I wanted HOPE! Something to grasp onto! A life -rope! like i COULD do this!
Thanks for sharing, Sarah!
KandL
KandL

Sarah, moving and wise words from precious Natasha\'s mom. What a lovely little girl.
I too love to hear the sound of my child\'s name. There is no sweeter word. NATASHA!! EDWARD! ANDY! All of the beloved kids here!
Wishing love, peace, healing to all of us SOTHS..Linda
heartsandhands
heartsandhands

It\'s useful to think about what has helped and what hasn\'t... and clearly we are all individuals and ALLOWED to be different! Yay for that! I\'d say the important thing is to figure out what\'s useful for you. Take the best, leave the rest. Advise other mothers to do the same. I agree that anti-depressants and counselling are important. I took Klonopin to relieve the intensity and help me sleep for a while. It was good. Now I am ok. Also my therapist was REALLY good at helping me to name things and find useful ways to cope.
TLC to all,
S. xoxoxo
TamzinsMum
TamzinsMum

That was great to read, Thank you Sarah. I loved reading her helps. XXX Love