Just come out of a month long crisis and afraid I'm getting worse again!
Hi all! I've been out of action for a while now. I have just come out of a month long crisis which was sheer physical and emotional hell!! Full on respiratory failure and generalised paralysis and ended up with concomitant chest, sinus and stomach infections for which I am still on 3 different antibiotics.
I haven't eaten for 3 weeks and with tummy running 19 times a day on top of all the Weakness I have been left completely debilitated. The whole crisis resulted in me losing a job I had been so excited about and also coincided with the 1st anniversary of my dad and a friends passing and am sure that this worsened the disease too.
I ended up having severe drug interactions which caused terrifyingly real hallucinations! I feel more traumatised than ever in my life before!! I forced my neuro to let me out of hospital for my sanity yesterday but am battling to breath so much again this afternoon that I am so afraid I'm slipping again!! My mom is with me for the weekend but then she has to fly back to Joburg and I'm all alone in Cape Town. I will never manage alone if things don't get much better over the weekend but the thought of going back into hospital makes my stomach go into a knot! I'm frustrated and terribly scared!!!
I haven't eaten for 3 weeks and with tummy running 19 times a day on top of all the Weakness I have been left completely debilitated. The whole crisis resulted in me losing a job I had been so excited about and also coincided with the 1st anniversary of my dad and a friends passing and am sure that this worsened the disease too.
I ended up having severe drug interactions which caused terrifyingly real hallucinations! I feel more traumatised than ever in my life before!! I forced my neuro to let me out of hospital for my sanity yesterday but am battling to breath so much again this afternoon that I am so afraid I'm slipping again!! My mom is with me for the weekend but then she has to fly back to Joburg and I'm all alone in Cape Town. I will never manage alone if things don't get much better over the weekend but the thought of going back into hospital makes my stomach go into a knot! I'm frustrated and terribly scared!!!
Replies
Oh honey! I\'m so sorry. It does sound like stress isn\'t helping you. I\'m sorry about the job too. I hope you get better over the weekend and don\'t have to go back to the hospital.
Cathi
Ange, So sorry to hear of your setback...please rest and just take one day at a time. Your in my prayers and please try not to do to much.Remember, When one door shuts, another one opens..
Ange, I am so sorry. Rest, rest, rest, let your mom take care of things at the house. Does your neuro have any follow up IVIG or Pex scheduled for you? If you get worse make sure to go back in, I know it isn\'t fun but we need you to stick around.
Hugs,
Jen