Its been almost a month since I posted!
Still coping. Liver enzymes are still rising, despite being off of cellcept, so I suppose I will have to talk to my doctors tomorrow. I had went several days with abdominal pain, but woke up with pancreas pain (Area that hurt when I had pancreatitis) during night on Friday. Had fried fish at supper, so wonder about fat. I have been so careful.
Possibilities for my enzymes rising? 1. Though my ultrasound showed no stones, maybe I have sludge in my gall bladder. 2. Elevated cholesterol despite usually careful diet, maybe need med? 3. (Please God, not this one) Autoimmune liver disease. Guess it is time to address it. It is interfering with the treatment of MG.
I am quite weak and easily fatigued now, though try to force 10 minutes of walking or other easy cardio exercise. Mestinon seems to help with chest "heaviness" though the fatigue seems to require naps or rest. Swallowing okay. Arms hate to do much of anything unless the can be rested on a table. Eyes are making artwork difficult even, even when I close one eye.
But, I will discuss these things with neuro and family practitioner tomorrow and face the inevitable tests and probably new specialist. I truly do feel emotionally better today.
Here's the required photo of Gray, modeling his dad's safety glasses.
And her he is eating with chopsticks, like daddy. Do you see a theme? Told my son in love that he best mind his P's and Q's.
Possibilities for my enzymes rising? 1. Though my ultrasound showed no stones, maybe I have sludge in my gall bladder. 2. Elevated cholesterol despite usually careful diet, maybe need med? 3. (Please God, not this one) Autoimmune liver disease. Guess it is time to address it. It is interfering with the treatment of MG.
I am quite weak and easily fatigued now, though try to force 10 minutes of walking or other easy cardio exercise. Mestinon seems to help with chest "heaviness" though the fatigue seems to require naps or rest. Swallowing okay. Arms hate to do much of anything unless the can be rested on a table. Eyes are making artwork difficult even, even when I close one eye.
But, I will discuss these things with neuro and family practitioner tomorrow and face the inevitable tests and probably new specialist. I truly do feel emotionally better today.
Here's the required photo of Gray, modeling his dad's safety glasses.
And her he is eating with chopsticks, like daddy. Do you see a theme? Told my son in love that he best mind his P's and Q's.
Replies
Son in love--I like that Debbie and these precious grandchildren we have. I am put out with the eye stuff, too, and find that napping is the best thing for it. I love that feeling when you wake up and the world is clearer. I hope your pain clears, too SOON. lots of love and virtual hugs, time for another nap! xoxoxox b.
I agree. The pain has to go. After that you will be able to deal with this latest blow!
Yes go away pain! Let us know what the dr says. Luv the pictures of Grayson.
These are a lot of challenges. I find it amazing that you are doing well emotionally and send hopes for such a continuation. Cute grandchild!!!
Hope you get the answers you need. Great pictures.
Hope things are improving.