I made it through the weekend
First off, I must apologize for frightening my friend here. This site has become a much needed daily boost of love and friendship. I missed it yesterday with the update work.
Saturday was ugly. I don't even remember much of it! I know that at several points, I would have went to the ER in the late afternoon, but there was no one here to take me. I couldn't get enough air out of my lungs to speak. My husband related to me that when he came home for lunch he was frightened at the sight of me. I was gray. I do remember him kissing me goodbye and asking if I was going to be okay. He told me that night that he was fearful that he would come home to find me dead.
Saturday night, I got a bit perkier. Sunday, I had a banquet to run for a voters meeting for a non-profit, 200 people and 30 children. I managed, at a slower pace, but felt running circles round the room because I felt 3000 times better than Saturday. Don't misunderstand. I am still having pulmonary issues. My chest wall was sore by the end of the day and I fell asleep watching my packers, but with a smile on my face.
Maybe a bit punkier this morning than yesterday, but my pulmonologist appointment is only a week away!! I am sure he will get me breathing right.
Wish I knew what causes the ebbs and flows of MG. They sure are weird. I remember a few months ago having symptom free days and thinking "someone made a mistake, I am fine."
Saturday was ugly. I don't even remember much of it! I know that at several points, I would have went to the ER in the late afternoon, but there was no one here to take me. I couldn't get enough air out of my lungs to speak. My husband related to me that when he came home for lunch he was frightened at the sight of me. I was gray. I do remember him kissing me goodbye and asking if I was going to be okay. He told me that night that he was fearful that he would come home to find me dead.
Saturday night, I got a bit perkier. Sunday, I had a banquet to run for a voters meeting for a non-profit, 200 people and 30 children. I managed, at a slower pace, but felt running circles round the room because I felt 3000 times better than Saturday. Don't misunderstand. I am still having pulmonary issues. My chest wall was sore by the end of the day and I fell asleep watching my packers, but with a smile on my face.
Maybe a bit punkier this morning than yesterday, but my pulmonologist appointment is only a week away!! I am sure he will get me breathing right.
Wish I knew what causes the ebbs and flows of MG. They sure are weird. I remember a few months ago having symptom free days and thinking "someone made a mistake, I am fine."
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