i have PMR too. why?
first things first.......i am so sorry for all you have to carry ......you are so precious to me -- i wish i could help more......i get what you're going through and i would give my right arm to take away your pain and fatigue and frustrations.
saw the doc today. turns out i have polymyaglia rheumatica.......and something else. something that has to do with hypogammaglobulin something or other. confused - over it.
have to go back in on tuesday to give more blood in addition to the blood they drew today cause i don't remember why......i was given more rayos samples to take and if i pass all the tests, something about having a TB and Hepatitis screening first.....a chest xray has to be done at the hospital soon......something about a CXR for pulmonary fibrosis? a chem scan......which may be the additional labs for this Tuesday?
somehow someway my levels of inflammation are way up or maybe they are way down. it's one or the other. .....once i pass the tests then it's no more prednisone or rayos and on to methotrexate. i think she said it can be injected or taken in pill or liquid form, no clue if i can afford it or what is what.
sorry....i'm very frustrated. the appointment took forever. got there at 3:30......didn't get seen until well after 7 pm.....
so today we add another disease, PMR and i'm pretty sures there's one more.......maybe CVID or hypogammaglobulinanemia or something. i'm too tired to know stuff. but not too tired to get stuff.
sorry for being so confusing. i am not a doctor, i play a professional patient in real life.....how can i have all this crap? isn't there a no more i'm full up button or a no thanks my dance card is full? i wanted to pound her into the ground when she showed the third year intern how i react when she squeezes my legs, arms and shoulders areas. good thing i'm slow and puny so i can't harm anybody......but someday when i'm reunited with strength i'm gonna kick some doctor ass.
not all docs, just the ones who didn't take the time to explain so i'm not scared half to death. still have CFS, still have fibro, still have a lot going on already........i'm not so much pitiful and all out mad. for now. need some anger sometimes to get through.
at some point i'll feel bad for being mad......but for today i need it to fuel me forward, to help me get to that dentist appointment tomorrow. cause i gotta have a deep cleaning to keep the gum disease at bay. why can't a have a happy well adjusted immune system? couldn't they give those out if you open a new bank account or something?
i love you so much and with that i'm going to bed........tomorrow will be a new day and i gotta go see the dental hygienist. the end.
Replies
Ruthie you are in my prayers always but especially now.
Rest and try not to worry. Your day was too long and stressful. I hope you can get some rest. Whatever is to come. You have a friend and support from me.
I am nursing my knee stepped on it wrong and hurt it. Awful yo not feel good. especially at night.
Tomorrow is a brand new day I tell myself and that day is neither given or set in stone. Does that make sense? It does for me. You have courage and faith Ruthie. I am here and I care. Love you back and too❤️
You don't suppose they have a "disease of theMonth" that they hand out to we 'multi illness' patients, 'cause I have those too!!
Could they think we enjoy being sick??? Just a'wundering?
Wow! Another illness! This is just crazy! It's like you get one, you get them all. I do hope that the diagnosis can, at least, serve to get you some help for some of your symptoms. Hang in there, girl. You are a dear. Much love.
Ruthie, certainly feel for you as I sure can relate. Just about to run out of fingers & toes to count all of mine. Sending hugs, prayers & best wishes to the Sparrow Cottage.