I don't know whether I need a holiday,a week of sleep or 12 shots of whiskey
Today I had my annual appointment with my rheumatologist. As I have got considerably worse in the last 3 months I had pinned a lot of hopes on this appointment making changes and helping me. It was an hour to my mums, and hour to the hospital and then getting through a busy historical city center in a wheelchair. With my mum, sister and fiance in tow. My sister their for shopping not hospital. This morning before we went my legs went and i almost collapsed due to my leg going completely numb exteriorly but excruciatingly painful inside, after a bit they came back to life I took some pills and soldiered on, we got to the center and my mum struggled to push me along in my fold up cheap wheelchair that's not really suitable but i had to get it myself because I'm not entitled to one. Once or twice me nearly actually being thrown out of the wheelchair due to cobbles the whole experience was really stressful only to get into the appointment to find it wasn't my consultant but one of his 'team' who to be honest was lovely but basically isn't going to do anything but write a few letters and pretty much said it was out of his ability I needed a pain specialist and again felt the need to nag on about having the right mental state- well I was mentally stable before I got ill, my fibro caused me to be pulling my hair out. I did get to go in a shop and had coffee and cake with my mum and fiance however; which was lovely :) We got home late after a long moan from my sister due to my mum taking to long in a shop for me to have a sort of argument with my father in-law, baring in mind i feel he has been particularly rude the last few days anyway and was feeling upset about it. Then my partner had a fit because our puppy pee'd on the bed. Now I've got heartburn and my pain is a 9. The doctor says I need a take stress away from my life, yeah like that's ever going to happen. Feeling pretty much hopeless to be honest. I'm terrified, tomorrow my partner has to go to college again, all day, and I'm going to be here on my own when I'm struggling around with my stick with the puppy having to go through the room with my father-in law in who I'm not talking too every half an hour to take Lola out. I was struggling without her already, now all this today. I don't know If I've got another day all alone in agony in me.
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Hope the rest of your day got better
All 3??