have not been here in a while now I am back

    I am back. I am going through a tough time.  A couple of yrs ago I was going down hill quickly I was told I would have to decide between dieing or living on a vent. What a choice I never did make it. I was told about chemo. They give you a small dose every three months and it stops the attacks and shrink the lesions you have. It worked. I was told if you take more then 3-4 doses you can go into heart failure. I do not want that so I stopped at three doses. Now I am slowly getting worse. Not as bad as the first time. I have new symptoms.
I just do not know what to do. I am trying to live one day at a time. I am trying to make my life meaningful. I am still volunteering at the Sexual Assault Center. I work the Crisis Line Plus I do  office work for them once a week. Doing what ever jobs need doing. I also help with a couple of other programs. I am so fortunate to be with them. If I am having a tough time for me I just let them know & I take time off. I find it very stress free a "good fit"
     I will try to keep this updated and a appreciate any support I receive
Love & Hugs to all