Getting better
I got the steriod dose I needed.
500 mg x 2 x day x 3 days
it is working some, I got some feeling back in my body and breathing is easier. My legs and arms are getting more feeling and strength. In physio did the best ever today 15 mins and got up to gear 3. This is the strongest I have been in the last eight months.
The last time I talked to my MS doc he said not to put me on steriods on reg bases, I will get them when I need them hopefuly not more then every six weeks. This way we will know if the chemo is working, there will come a time when I will not need the steriods. I was told when this started I may need four doses over a year every three months, or keep on taking it for 2.5 years we will have to wait and see. If I can get to the point of walking I could go on MS drugs and keep the benifits of the chemo. I just have to keep on working hard.
500 mg x 2 x day x 3 days
it is working some, I got some feeling back in my body and breathing is easier. My legs and arms are getting more feeling and strength. In physio did the best ever today 15 mins and got up to gear 3. This is the strongest I have been in the last eight months.
The last time I talked to my MS doc he said not to put me on steriods on reg bases, I will get them when I need them hopefuly not more then every six weeks. This way we will know if the chemo is working, there will come a time when I will not need the steriods. I was told when this started I may need four doses over a year every three months, or keep on taking it for 2.5 years we will have to wait and see. If I can get to the point of walking I could go on MS drugs and keep the benifits of the chemo. I just have to keep on working hard.
Replies
You can do it Kayce!! Hang in there and keep working hard! You are such an inspiration to so many. Hugs and prayers to you so that you continue to get your strength back and can walk again!
It\'s good to see you with a green smiley face again. I can understand where you Doc is coming from. They reeally need to see what is causing the true improvement, chemo or steroids. Or, maybe it is a combo of both. Whatever it is, it\'s working and I\'m so glad. Kudos to you for gear 3!
Stay warm up North.
Warm hugs, Linda
well done on the physio, this is great progress!
keep up the great work!!
have a merry christmas