Another infection :((((
Another infection. I going to have to talk to my MS Doc. about this. It seems I get chemo to lower my white cell count & I get an infection that raises my white cell count. I mean I want to scream, like I get poision dripped in my veins (creepy enough right) is that not enough to deal with. A whole week of people treating you like you are a lepper; the sickness /tiredness what have you. My white cell count starts to go down & volla infection your white cell count goes up. I am on antibotics again.
I have been on one kind or another for 4 months; off no longer than 1.5 weeks. I have constant bladder infections I think there is something else going on in my bladder then simple infections. How can you have an infection get treated for one week wait two days urinalizes again have a different infection on another antibotic for another week wait two days & so on & so on for 4 months a couple of times I was treated for 10 days & 14 days. They sent off my urin a couple of days ago waiting to hear back from them. But there is quit allot of blood in my urin & white crap they call settiment (I only have this much of that when there is an infection 8-l
I site to my superpubic catheter is also infected. I was put on the antibotics for that. It is pusey & stinky & opening up. This happened the last time as well but stayed infected for two months. At least this time they are treating it faster with the antibotics.
On the plus side this is the longest period I have gone without a new attack of the MS. So at least in part the chemo is working. Not getting worse getting better slowly but surely & no new attackes.
I am going to talk to my doc about going on an antibotic one week after chemo to prevent some of these infections. I am also going to talk to the urlolgy doc about scopey my bladder to see what is going on in there.
I think I am going to have to learn to live with the numbness in my feet/legs. I feels wierd but I can move so I think I can learn to deal. My Hubby has a saying " Life sucks sometimes but compared to the alternative I will deal with it." I think I feel the same way.
Physio is going great, new exercises being added, doing more each week. On the bike on friday going to ask them if I can go to gear one. Rate now have to go to 80 rpm's to 120 rpm's to workout my legs I think if I do a harder gear & lower rpm's would be better. Given arm exercises, have found arms-hands-fingers all have gotten weak.
I have started to volenteer, doing things on my pc for them. Taking their hard copies of files & references putting them on pc files. It makes me feel like I am at least doing something useful for the first time in years. I know I have been ill but dam it is good to of helpfull again.
Sometimes it feels like I am whining. Others have it worse then me, right??
Got to talk to Bruce, about having my dog Shadow come for a visit. If we go to the hospital with his health records he can come see me. I miss him. Now that I can't go home I need him to come see me.
I have been on one kind or another for 4 months; off no longer than 1.5 weeks. I have constant bladder infections I think there is something else going on in my bladder then simple infections. How can you have an infection get treated for one week wait two days urinalizes again have a different infection on another antibotic for another week wait two days & so on & so on for 4 months a couple of times I was treated for 10 days & 14 days. They sent off my urin a couple of days ago waiting to hear back from them. But there is quit allot of blood in my urin & white crap they call settiment (I only have this much of that when there is an infection 8-l
I site to my superpubic catheter is also infected. I was put on the antibotics for that. It is pusey & stinky & opening up. This happened the last time as well but stayed infected for two months. At least this time they are treating it faster with the antibotics.
On the plus side this is the longest period I have gone without a new attack of the MS. So at least in part the chemo is working. Not getting worse getting better slowly but surely & no new attackes.
I am going to talk to my doc about going on an antibotic one week after chemo to prevent some of these infections. I am also going to talk to the urlolgy doc about scopey my bladder to see what is going on in there.
I think I am going to have to learn to live with the numbness in my feet/legs. I feels wierd but I can move so I think I can learn to deal. My Hubby has a saying " Life sucks sometimes but compared to the alternative I will deal with it." I think I feel the same way.
Physio is going great, new exercises being added, doing more each week. On the bike on friday going to ask them if I can go to gear one. Rate now have to go to 80 rpm's to 120 rpm's to workout my legs I think if I do a harder gear & lower rpm's would be better. Given arm exercises, have found arms-hands-fingers all have gotten weak.
I have started to volenteer, doing things on my pc for them. Taking their hard copies of files & references putting them on pc files. It makes me feel like I am at least doing something useful for the first time in years. I know I have been ill but dam it is good to of helpfull again.
Sometimes it feels like I am whining. Others have it worse then me, right??
Got to talk to Bruce, about having my dog Shadow come for a visit. If we go to the hospital with his health records he can come see me. I miss him. Now that I can't go home I need him to come see me.
Replies
Wow, so sorry you are experiencing so many bladder infections. Another DSer was just put on a maintenance antiobiotic because of her frequent UTI\'s. That might be something else you can ask your doctor about. Sounds like you have a good game plan going in and asking the right questions. I don\'t know much about the type of cath you are using, but it sounds painful now that it is infected. Sounds like a warm bath would bring comfort to the area if you can stand getting in a tub without pheudo-symptoms hitting you. I know it must be hard, but try to remember that yes, there are others worse off than you as well as others better off than you. It may help neutralize any feelings of being down about your situation. IDK, just thinking. You have so much adversity, and your outlook still is fighting and kicking MS in the @$$. Don\'t lose that fighting personality!
Great news on the volunteer work. Sounds like you are performing very helpful work for the organization you are volunteering for. I still work (from home), and only continue on for the feeling of accomplishment it gives me. Some days are really hard, but it gives me a purpose. I\'m sure you feel the same way. Very glad to hear about your work.
Your exercise regime sounds tough too! Good for you. I couldn\'t ride a bike if I wanted to as my legs are so weak and in pain from the MS. Keep up the good work.
Great news on the MS front of no new attacks. Do the doctor\'s attribute that to the chemo? Do they do any type of MRI testing to verify this like they do with other MS drugs?
I really hope you get to see Shadow soon. Our animals are like our babies, and I can only imagine how badly you miss seeing him. I hope you get to see Shadow soon.
Your doing great girl. Keep up the attitude and good work! You\'re an inspiration to me and I\'m sure many others.. Lynne
So sorry to hear about the \"bugs\" in your bladder. Tell your Doc to send in a good exterminator to get rid of them once and for all. LOL Girl, you put me to shame! I have felt so lazy lately. I think you are doing more than I am so you are really an inspiration to me to get off my lazy backside and get moving. By all means, get Shadow to be with you ASAP. We need our furry babies. There is something in their eyes that makes everything OK. I hope you have a gentle day and continue to improve. Warm hugs, Linda
Thanks for the comments Lynne I would love a tub but I get mostly bed baths daily bed baths even a shower would be great I take coolish showers and take in a cup of ice (I am called the ice queen here by a couple of people because I eat soooo much ice.
a super pubic cath is when they punch a hole just above your pubic bone into your bladder so you have a hole in your belly and mine keeps getting infected :-(((
so no soaking in the tub as soo many use it
it is thought since my white cell count is going down not to chance it but we are working on a shower
when I go home I look forward to taking a long bath with a very large cup of ice chips :-D
Linda do not feel lazy when we are tired it is our body telling us to take it easy
take care of you
Kayce