A little update

I havn't done an updated journal in awhile,
We all know how Surgery #3 went horribly. I can't believe I'm 20 years old (21 in August) and since I was 9 years old I have been dealing with this crap. I am scared on what is next because in the line of hormonal therapy there is nothing. I am at this point willing to be a guinea pig. I am also highly considering trying some natural suppliment ideas which have worked for other women. I keep wondering, how long? How much longer untill I feel 'normal', how much longer untill something works? I am slowly mentally coming to terms with the fact it might never happen.
I went to the doctor today, I have a kidney infection, I spoke to her and she isnt my usual doctor but she is AMAZING, I discussed with her about Femara and it is not an option due to restrictions etc here in Aus. If I were to have it it could cost me 1000's and I don't have that sort of money. She said I will have a hard time because I am a bizare case (wish she could meet some of the ladies on here! she'd realise it's not so bizare), she said I am in for a continual battle since nothing works for me and most women with endo find *something* to help ease the pain. She listened, she gave a womans soft heart and she listened, she didn't look at me like I am a drug seeker, she didn't look at me like I am crazy for doing my own research, she commended me for getting involved, a breath of fresh air, Maybe I'll change or keep my male and female doctors, top 2 incase I can't get into one.
My period came earlier then expected, but who knows the real due date of it anyway. I ovulated just days before which worries me. But thats something else to deal with when the time comes, atleast I am ovulating. However my FSH levels don't register on the OPK's so they are no use to me!
Some good news has happened, I did get into the university I wanted, fingers crossed my health doesn't interfer!
Small steps are important, small goals, small achievements. There's a bigger picture out there this all fits into, and while I want to cry myself to sleep and cry all day long curled up in bed in a ball, it's not productive rather it's detrimental.
I just hope I see the bigger picture soon.
I just hope I see a cure in my lifetime.
Small steps.
 
x

Replies

Angelpuss
Angelpuss

Tate, hon, you are such a brave and strong young lady. I\'m glad you found a doctor who is compassionate and caring. It does make a difference to know that you will be listened to. Maybe, Femara will be available here once the patent on it expires. We can only hope so.
You are in my thoughts, sweetheart
Love nd hugs
deleted_user
deleted_user

Hope things work out for you. Glad to see that your not letting your health stop you from the things you want to do. Stay positive. Stress is the biggest contributer to bad health. So I wish you many good days. Good luck with school and congratulations. xoxo
taters90
taters90

Thanks ladies,
I always hope it\'s so important, right? :)
deleted_user
deleted_user

Love you sweetie you know im here xoxox
taters90
taters90

Thanks hun, I do, same for you! Love you x0x0