update

Still haven't had my Sandostatin shot.  Did take  sq of Octreotide since I have had diarrhea for the past few days.  I just wish I were normal and could eat what I want.  I just wish they would have told me that I'd be skinny and not be able to eat the foods I crave.  I love chocolate and get so sick when I eat it.  Sometimes, though, it is just worth the being sick!
I am going to try and get an appt with the NOLA docs in May when my daughters school is out (she teaches at the University so will be off for a few weeks).  They still haven't clarified my blood tests (It was typed from the NOLA docs with ICD9 coding and everything so I have no idea what they are lacking and they won't talk to me.  So weird.  I just hate this not being in the loop.  It's why I've procrastinated at having tests done.  I get so stressed coordinating this stuff.
I've been hurting more lately but don't want to increase any of my pain meds.  I am on enough!  I just would give anything if I could get off the Prednisone.  I've tried and I just need to stay in bed I feel so weak.  I wish I never would have started it!  And THIS is feeling good??? Ugh!
Nothing else today.