8/13/12 - 10/12/13: Amazing it's been over a year.
I can not believe it has been so long. Amazing how time flys. Life just keeps going and going faster and faster. Hopefully it won't leave me behind. Sure do feel like it might. I am so extremely blessed in my life to have all I do. So how can I still feel so sad, bad or is it mad? What is my problem and why can't I overcome this doomed feeling.
My HS has been strange, steady but different. Smaller sores with more breaks every now and then which is a wonderful change. That means less draining with actual healing of old scars. The new ones that had never burst are smaller. As usual it has refocused on other areas and is attacking again but smaller and faster progressing.
Hard not to get bummed when I have to break out my inflatable donut to be able to sit down at work but at least I can still work. I'd really like to carry it around with me these days but boy that's not cool.
Stayed off of all antibiotics for well over a year now and that in itself has helped me more than anything. I'm still on the same meds...HRT, X.ET,LD.Asprin and have made no real changes. Cut back on the Hibiclense to once a week because I felt it was killing too much of the germs you do need.
Salt water and sunshine are my best friends so it depressing that Fall is here. You would think it is better but I find it to be a worse time of the year for me.
No real changes in my diet but always doing random searches for something that might make a change to my breakouts (checking out dairy and nuts, right now). Wish I could say that my trigger was more under control but it's not going to be. I've just tried to accept it better.
When people ask me now why do you walk funny or look so mad when you are walking around I just say I've got an incurrable skin diesease that really hurts sometimes. Could not do that before. Progress. I am doing way better than ever. I believe it is because God sent someone to pray and fast "For Me" and who enterceeded in Jesus's name to specificially heal me. There is no other way to describe the break. Thank you!
I pray for all of you; any of you who are having it tough hang in there God hears our prayers and will heal you in His time. FIND A REAL CURE!
My HS has been strange, steady but different. Smaller sores with more breaks every now and then which is a wonderful change. That means less draining with actual healing of old scars. The new ones that had never burst are smaller. As usual it has refocused on other areas and is attacking again but smaller and faster progressing.
Hard not to get bummed when I have to break out my inflatable donut to be able to sit down at work but at least I can still work. I'd really like to carry it around with me these days but boy that's not cool.
Stayed off of all antibiotics for well over a year now and that in itself has helped me more than anything. I'm still on the same meds...HRT, X.ET,LD.Asprin and have made no real changes. Cut back on the Hibiclense to once a week because I felt it was killing too much of the germs you do need.
Salt water and sunshine are my best friends so it depressing that Fall is here. You would think it is better but I find it to be a worse time of the year for me.
No real changes in my diet but always doing random searches for something that might make a change to my breakouts (checking out dairy and nuts, right now). Wish I could say that my trigger was more under control but it's not going to be. I've just tried to accept it better.
When people ask me now why do you walk funny or look so mad when you are walking around I just say I've got an incurrable skin diesease that really hurts sometimes. Could not do that before. Progress. I am doing way better than ever. I believe it is because God sent someone to pray and fast "For Me" and who enterceeded in Jesus's name to specificially heal me. There is no other way to describe the break. Thank you!
I pray for all of you; any of you who are having it tough hang in there God hears our prayers and will heal you in His time. FIND A REAL CURE!
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