rant
Its hard to find people that actually know how you feel sometimes. Everyone seems to think that because you can't see it, means it doesnt exist.
I think the worst part is when people are trying to push you to do things and even though you've been trying your best for most the time, they think that's how its always going to be. No one seems to notice when you're having the pain day from hell and all you wanna do is stay in a fort of blankets and binge watch whatever you can on Netflix. They just think you're being lazy.
Just because I can pull myself together enough to go to the loo or to eat doesn't mean I'm ready to take on the day. Not everyone understands.
If i can't brush my own hair on my bad days, how on earth do you think I'll be able to do a 30minute walk up a hill?
Im just ranting. Im on bad day number 28334324 and It doesn't seem to be getting any better.
I think the worst part is when people are trying to push you to do things and even though you've been trying your best for most the time, they think that's how its always going to be. No one seems to notice when you're having the pain day from hell and all you wanna do is stay in a fort of blankets and binge watch whatever you can on Netflix. They just think you're being lazy.
Just because I can pull myself together enough to go to the loo or to eat doesn't mean I'm ready to take on the day. Not everyone understands.
If i can't brush my own hair on my bad days, how on earth do you think I'll be able to do a 30minute walk up a hill?
Im just ranting. Im on bad day number 28334324 and It doesn't seem to be getting any better.
Replies
I agree with you about people don\'t see it they don\'t believe it. It\'s hard to have to constantly explain that I am not feeling well and they can\'t see it! I don\'t like to have to point out my health problems. Most are blind to what is also right in front of them to see! I have arthritis in my hands, not real bad but enough to see it! Yet too many will feel slighted if you don\'t want to shake their hand! I have had too many people crush my hand when they clasp it! But then I try not to get mad, I am not perfect and that means I can make a stupid mistake too. But I know it is harder for you because you are having to explain to the same people and they don\'t get it! I wonder if you can find something to email or text them that is official that will do the legitimizing of you condition. I hope I have been of some help. And don\'t stop ranting in your journal, even if you make it private(for your eyes only) it helps. (((HUGS)))