$4,500.00 PILL A MONTH KEN MIGHT BE ALIVE

Why does it seem that you feel you can make it and then your thrown right back into the pain, the heartache, the emptiness....of your child gone...
Everyday, Every time I watch TV, they are always advertising Cancer Treatment Centers...and they show these wonderful looking people riding off in their golf cart...or walking hand and hand with each other....as if it is the best time of their life.
Stupid ads I think...there is not real cure for all cancers...even when Ken was sick going on the internet, doing research...it's your not dying of cancer, your living with it like a chronic disease.....WHAT a STUPID...way to put something that is probably going to get you in the end...No matter how long you fight, no matter how much meds they give you, no matter the hope....it is generally the cancer that gets you.
Sometimes it is so difficult of seeing these ads daily...thinking where was the cure for my son, my neighbors who were gone her less then 3 months after finding the cancer, he after 1 year....Why do they make such light of that there is a cure...
I don't care what some think...people need to know the truth...they know your fighting for your life....and your lucky if your body can fight the disease for a longer period....
My son lived 2 years and 23 days after we found out about the cancer...and he was fighting it everyday of his life.....
Ads are fine, people need to know where one could/can go for the best treatment...but ads that make cancer look so easy...by their ad...I say help yes but don't make it looks like an easy road to travel.....It isn't...
So where is the cure...where is the hope...where was the...your going to be in remission....well it didn't happen in my son's lifetime....but maybe one day there will be...but only of someone is not making a lot of money off it..
In the very beginning that I had forgotten about until about a month month ago, I remember that there was a pill that could help someone survive certain cancers.
Here is the catch...$4500.00 per month for one pill...Who has that kiind of money...and I guess that is why we never talked about it again....
Medicines I take cost about $900.00 per month...yet it was a generic drug which ran not much over $50..00 a month....just as their patent was about to run out, they pulled it off the market,,,,took the generic off the market, said they changed some of the ingredients therefore, they will now have it tied up at the higher price for the next ten years....therefore, when one is sick, you have to try to find something your can afford.
I wonder, if my son or our family could have afforded that $4,500.00 per  month for that one pill...would I still have my son alive.....Who rules...The cost of care is more than most of us can't afford....so we do the best we can...we end up losing our loved ones....when can that ever change
I wonder why cancer patients can't get the medicine to keep them alive...why is the cost have to be so high.....

Replies

RichieD
RichieD

We pay the highest price of any country in the industrialized world for our medical care. I could almost accept that, if it were not for the fact that we place down near the very bottom for patient outcomes. Infant survival rates, longevity, quality of life, all these indicators are way down compared to countries that spend a fraction of what we do. As I recall, the runner-up for expensive medical care spends half of what we do.

Something is wrong with this picture.
deleted_user
deleted_user

I don\'t believe that these drugs can \'cure\' the cancer, only prolong their lives. If there was such a drug, we would all know about it! I was interested in investing in such drugs and was watching how the clinical trials went, their FDA approval and such. None delivered as promised. The stocks rose on their FDA approval, then fell once actually used in treatment.

I know the ads for cancer centers you are talking about. I really don\'t know... I had a friend who\'s father went to the Anderson Cancer Clinic for lung cancer. They extended his life, but the quality of it was terribly sad. I guess he went into remission for a bit, but it came back with a vengeance.

Cancer treatment is a business. Medicine is a business. We are consumers, not patients. People fight against healthcare reform, satisfied with the status quo. I don\'t get it. Insurance companies rule, false advertising is just that. Once the profit goes out of healthcare, it will change!

I know with my son and his scoliosis, all of the advances made in the treatment of it, came out of England where there IS socialized medicine. They seek CURES. They are not satisfied with dealing with the status quo and reaping the rewards of doing so. Watch where new meds or treatments come from... usually from Europe. Where they DO have socialized medicine. It\'s a fact.

Sorry for the diatribe, but ..

I\'m upset with you, Sandi.

LOVE,

Soosanah2
deleted_user
deleted_user

Richard and I were responding at the same time. It is time people realized we do NOT have good healthcare and reform is necessary. Jim was uninsurable, \"pre existing condition\". My ex could no longer have him on his very comprehensive health insurance because of his age. I was told by someone who works in an ER that the reason the dr. allowed him to leave the office that day and not refer him to the ER was because he did not have insurance! I have reason to be angry, and I am.
deleted_user
deleted_user

BTW I sent Jim\'s story to Obama when he was soliciting stories on instances of healthcare abuses. It was published. I got many letters of sympathy.

I will continue to support healthcare reform, insurance reform. AND also fight against those who choose to lie about it and portray it as something BAD. It is necessary!!!! Perhaps not this current bill, but it is a starting point.
deleted_user
deleted_user

Yes, it does seem like something is terribly wrong with our society, if people needing medical treatment, cancer cures, etc. cannot afford to receive said care. I guess I wonder \"why\" so much profit has to be made off the backs of the ill and suffering... $4500 per month seems pretty outrageous for one pill...
Love, Donna
Sandi2947
Sandi2947

Yes and I guess that is it was never brought up again the $4500.00 pill, when I thought about it after Ken passed, I thought why did we just all find a job and try to come up with the money to save him..I am not physically able to work, but I could have made myself...It\'s sad when profits are more important than people
Missinglisa
Missinglisa

I am Canadian and we do have good health care here in Canada. It isn\'t perfect and our waits can be too long, and some drugs are not covered (usually if we go to the media, we get the drugs or treatments we need) but we don\'t have to avoid going to the doctor because we can\'t afford it.
Health care is definitely a business in the USA and some of our politicians would prefer an American style of health care - we see more and more private clinics opening. We also see some of our skilled physicians go South for the \'big bucks\'.
I too hate the commercials promising cures for everything. We get American television and also see the ads for Cancer cures and other health care ads. It really irritates me. I am a nurse and know that the promises are exaggerated - they don\'t mention the failures.
The drug companies are the worst. It is big business and I get angry and frustrated when I hear about the profits they make. Our drugs are less expensive but the price of new ones on the market is obscene.
I taught English in the Czech Republic a few years ago. One of my students worked for a big name multinational drug company. She had a PhD in microbiology and was responsible for ensuring that one of their antibiotics was promoted. She provided the scientific evidence. I happened to have an infected elbow and was on another antibiotic (from a different company). I asked whether hers was better - she said there were both effective. She said it was just business. It is interesting to note that I also taught a plastic surgeon who was also the the head of the burn unit in Prague. He drove a Skoda (an inexpensive branch of Volkswagon) and she drove an expensive, sporty Alfa Romeo. It just doesn\'t seem right.
I am on a rant but I get very frustrated as I believe we should all have access to good basic health care.
deleted_user
deleted_user

Drug companies and Insurance company CEOs all have a place in hell, as far as I am concerned. They are the culprits, much like the speculators for oil companies drive up the cost of gas. It is and always will be about money!! The rich can live and the poor can die. Personally, I have seen too much suffering with chemo and radiation and experimental drugs in hopes that another day is added to this life. My husband and I have made a pact that if one of us gets cancer that we will not go through with chemo. It lessens the quality of life and also shortens it for some by adding to their misery. My friend died of colon cancer .....she was not diagnosed in time but she also took experimental drugs that caused her much more suffering by enduring the horrible side effects. She died anyway. There is a lot wrong with our country\'s approach to healthcare but the insurance companies are behind the rising cost. I do not support the current heathcare bill but would like to see regulations on the insurance and pharmeceutical companies. So many people look at those ads and have hope...but only if they have money. Even if they have insurance...there is still a chance they will be denied certain coverage AND THAT IS WHAT IS WRONG....hugs, dale...brandon\'s mom
CorriesMom
CorriesMom

I hate all those ads on TV too. To watch them you\'d think there wasn\'t a disease on earth that would kill anyone ~ just take one of the magic pills (with disclaimers longer than the ads) and you will be driving off in your golf cart with no pain, no depression, no cancer, no heart disease ~ if this were the case we\'d all be stuck for eternity on this planet rather than moving on to something bigger and better than we can possibly imagine now.

I\'m 150% with you, sweet Sandi, and send lots of love and great big hugs ~ Debbie
Sandi2947
Sandi2947

I do not know if I would take the chemo if I got cancer, I have told my husband I don\'t think so...Yes it only buys some time.,..and if I had time maybe another journal to share the pain that the chemo did to Ken...-most were unbearable....
hands and feet feeling like they had been beat with chain with nails in them is one of the side effects of one of the so called treatments...which did not save him only gave him the average life span for his Stage...I think personally there are things for cancer...but it is a money thing for the big wigs...just as I feel about selling books for a cure...if you have something to share to help..just charge for the cost...not trying to make money and if you make money then put the extra money to some good research...Yes, I don\'t think cancer drugs heal...they just make the body suffer more...and drug companies make more money on us...us that get cancer or know someone who has cancer....
KandL
KandL

It isn\'t right. I agree with all of the above comments. The AMA is in bed with the pharmaceutical companies and it is all in the name of greed. No one can know if that pill would have saved Ken\'s life but he should have access to it! I am so sorry. Gentle hugs, Linda
NellW
NellW

I see those commercials too about the Cancer Centers and people talking about Cancer like there is a cure. There is no cure and I don\'t believe that anyone is going to be miraculously healed ( I think how stupid I was for saying that I knew God was going to heal Jeff from cancer). Like you said, if you have cancer, that is what is going to finally get you - some sooner than others. My Jeff lived 15 months after he was diagnosed with colon cancer. We went to Duke a week before we lost him and there were these trial drugs, but he didn\'t make it to get on any of them. Just like the commercial that says she has pancreatic cancer - I don\'t know of anyone that has survived after they have been diagnosed with pancreatic cancer. I don\'t understand, they have so many diseases in check but not cancer. Why? I don\'t think it is the doctor\'s or the medical profession\'s fault. They have so much regulation - but if the person is dying why if they choose can\'t they have the drugs?
Nell
deleted_user
deleted_user

I do need to add the \"present healthcare\" bill would allow Jim to be insured (no more \'pre existing conditions exemption) AND he would have been insured until the age of 26.

SO I support it with some tweaking.

Soos
NoraMc
NoraMc

It\'s not just the cancer ads, it\'s all of them and the movies,,,happy ever after ones,,,yuk!!! Nora
ter1
ter1

I agree with all the comments. Our health system in the States is terrible and the drug companies with those commercials are idiots and cruel showing healthy happy patience using their drugs.