Well Im back from VA, and gonna start all my meds today, mommy's day, cause Im off sunday and monday so if I get sick , I will have 2 days to do it (pessimist huh?) I dont know how Im gonna work this medicine schedule cause I cant take any of them together and there has to be so much time between each and it is different for some of the meds. the one med comes in powder form and has to mixed with food or drink....gonna be fun to transport to work. I guess I shouldnt be complaining , Im lucky to be getting treatment, some arent as lucky. Its just really hard to know Im gonna make myself sick , before I get better, and I may not get better at all but only slow the progression and how do you measure that anyway?

Replies

deleted_user
deleted_user

You will get better! I set up a reference graph for my meds to help know what when. I also used box from the fishing tackle section at the store to divide the day into 4 segments (I could set up six days at a time of pills) then only had to wory about the liquids.
Imagine every herxing pain as an assault in a battle. Use Visualization to see the little buggers dieing! KILL KILL KILL!!!
The battls are tough but the war can be won.
deleted_user
deleted_user

I am sure you will figure it out. I hope it helps! I was usually sick before better too, but that gave me something to look forward to (the better days).
deleted_user
deleted_user

Rber,
You are one tough woman: you will work it out & in time you will knock it on the head - dead Lyme! Seems you have the help (finally!!!!) from VA - I do hope it goes well with minimal sides. Best regards JaneD.