Its most amazing, I can never forget my medicine becausae my flasing light aura is on a time clock. the lights in my eyes start flashing and I look at the clock and sure enough, its med time. who needs an alarm? not I. oh and the great part about uping the meds is I have been sleeping at night..OMG, did she say at night? yes at night, odd isnt it, you know when normal people sleep?and ya'll know good and well Im not normal. the weight, well thats a different story, its falling off now. not at all an unwelcome thing at this point, still got about a ton before I need to be concerned but the first ten were slow but then next 5 fell off. no, Im not complaining, but I am hungry now feel like I could eat a horse! so Ill go down stairs and Ill plan to raid the fridge and I will return with a handful of pretzels half of which I will give the dogs....and thats typical. yes Im taking vitamins, drinking milk, trying to eat good things, but nothing appeals to me, well it does from afar, but the second it touches my lips.....yuck. except some tuna helper the other day, I ate a whole bowl! and then I left the stuff on the stove and forgot about it and ended up having to throw it away....wahhhhhhhhhhhhhhhhhhhhh! oh well. once again let me apologize for not keeping up with everyone, I am feeling very lazy. if all goes as planned, I should have 8 more days of rocephin and go back to work on the 15th. between me you and the fence post.....unless something dramatic happens and soon.....don't see me working any tome soon.....I am still in been pretty much 24 hours and I get winded climbing the stairs, but hell, Ill try it, cause Im pretty dang bored. I go to the GP tommorrow, will get a referral to a infectious disease doc or maybe he will do ZAP (z-pack and plaquenil) which is supposed to be next, which I cant wait for! my EX-rheumy, yeah EX (fits in same category with EX neuro who said this was depression, EX rheumy said this was fibro and neuropathy, never did a test for either) had me on plaquenil several years ago, and I felt like superwoman after about 3 days of it! oh please God gimme ZAP! that would put my 3rd day of ZAP on my first day of work! perrrrrfect. wish me luck.                                              love and miss ya'll                                                                        Lorraine

Replies

deleted_user
deleted_user

IM me when you get a chance, In another relapse so Im in ond out of bed, but if you see me on IM me. we need to catch up....
hugs
deleted_user
deleted_user

Lorraine, the Topamax weight loss will even out eventually. I lost about 30 pounds the first 9 months and that\'s how I\'ve stayed. I don\'t have cravings but I can EAT! I often outeat my husband at dinner, and no weight gain..weird. Stay strong and sleep. -Jen
deleted_user
deleted_user

hey nice to see you are feeling a bit better, can\'t keep a good woman down for long eh??
Miss ya talk soon
Deb
Yea I lost weight on Topamax, but hey I take it,no matter the reason,weight loss to me is always welcome.. :)
deleted_user
deleted_user

you stay well and healthy, take care of your self.
deleted_user
deleted_user

Hi there bear, I\'ve been zonked (on & off) with the dreaded migraines for 3 weeks - OK now, but missed a lot -(maybe I forgot). Did you finally get a diagnosis? - another DS friend just diagnosed with a disease caused by ticks - I did a search on the web. Seems there\'s more than one school of thought on Lyme disease - does this sound right to you? I get the impression there\'s a lot of denial going on re. this illness. Assume you are on treatment & it\'s zonked ou out. Am cranky - went to cityto renew driver\'s licence - left shoulder bag on bus - Luckily I phoned immed., & driver found it: but have to ask Terry next door to take me to depot tom.morning. No cards, money, keys (I hid front door key in garden, so I got inside)and 300 dollars in purse. I didn\'t loose the bag with Norton Anti-virus in it! Wow. Take care now (& don\'t loose anything) JaneD.
deleted_user
deleted_user

Glad you are feeling better! The weight will even out. I had the same problems. Now I gained a pound and I was trilled. Big Huggggggsssssss!