day number 18 of 28 of rocephin and day 29 of topamax. I am at what was suppossed to be my top dose of topamax 50mg am and 50 mg pm and I am still having migraines, well more auras than migraines, bad today. alot of numbness and burning in left hand and both feet. found out my neice takes 100mg am and 100mg pm so I took 75 tonight and will call doc in am about upping. herx is calming down with lots of benadryl. weight dropping steadily, but not dangerously. when I dont drink enough fluids I give myself a bag of saline through PICC line. still pretty much in the bed 24/7 but if the weather were better would probably do a little more. have been feelin too awful, just week and tired. seems like if I do much I pay for it for a few days , and now a couple. perhaps soon it'll be hours, then back to normal. just waiting for some insurance money and paper work from an LLMD and Ill need to find a infectioud disease doc. and Ill be good! Hope all are well, sorry havent been keeping up! Love ya! Lorr
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miss ya.......
just hang in there and you know how to find me..
hugs!!!!!!!!!!!!!!!!!!!!!
I was on a higher dose of Topamax then that. I will have to double check the old scripts to remember how high. Maybe 150-200? It worked great for the migraines over all, but I did still get them once in a while. I started on a low dose and was built up over time. Another issue with Topamax, other then the weight, is it makes your mind very slow. I didn\'t know it did that until I mentioned it to my neurologist and he told me it causes that. I don\'t remember it helping with the burning and numbness though. I know meds like Lyrica and Neurontin do, but not everyone does well on them, me for one.
I would of stayed on it forever though, if it just didn\'t make my mind \"stupid.\" I just couldn\'t work and take it any more. It was the only thing that really helped my migraines long term.
I really hope you find some relief soon!
SOMETIMES I WISH WE COULD JUST FORGET MEDICINE, HOPE THING WORK OUT. GOOD LUCK
L..I take 400mg a day, but not for migraines..I do have the weight issue though. I have to struggle to stay above 90 pounds. I just want you to feel better, I AM NOT DANCING!