FINALLY! SOME ANSWERS AND I MAY HAVE FOUND A REAL DOCTOR!  ok,  first of all my Lyme test, western blot, from my CSF from my spinal tap, came back positive. So starting tommorrow ( I guess) or friday or Monday. whatever (my appointment was late today) a nurse is going to start coming to my home ,everyday, for 2 weeks to give me IV anti-biotics. and my new doc says I most def am having irretractable (?) migraines so he is slowly going to up my topamax. I am def off work till the 3rd of December due to the antibiotics. OH!!!!! and someone FINALLY did a fibro exam on me and concluded (with other than their pychic abilities) that I DO NOT HAVE FIBROMYALGIA, gheeeesh at last. I have no problem with a fibro dx, it was the fact that no clinician had actually ever performed the "18 point" test. well they did today, and I had 1..... and that was questionable at best.so yes I feel kinda crappy, and Im sorry I have fallen very very behind on everyones journal's and all. I have been sleeping a whole whole lot! I dunno maybe things will get worse before they get better , but finally some answers!!! yeah!!!!

Replies

deleted_user
deleted_user

I am so glad lorr that you can finally get the answers you need. Now maybe you can get some releif. Lots of love kim
deleted_user
deleted_user

Holy smokes! It\'s about damn time too. Soooooo glad you are getting somewhere. I hope the treatments go well too.

hugzzzzzz Lisa
deleted_user
deleted_user

hope u get answers! take care!
deleted_user
deleted_user

just got a call from nursing care, they will be here today between 5 and 6.
deleted_user
deleted_user

Yay for answers, sweetie! :)

I\'ll be holding my breath for you. Hopefully the anti-biotics stop the nerves from over-firing in your brain.
deleted_user
deleted_user

I can\'t believe it. You have had lyme disease this whole time and they couldn\'t diagnos it. Holy shit.. I hope the meds kick in soon and start feeling better. It will probably take a while for them to work. Thank goodness you found someone who may be able to help.
deleted_user
deleted_user

so glad you are findly getting some answers. take care.
deleted_user
deleted_user

OMG!!!! I am soooooooooo happy to here this bear.. not that you are sick but that finally you are getting somewere..
big hugs!!!!!
I sure have missed ya..
hugs
april
deleted_user
deleted_user

I am soooo f***ing you finally have some answers. (Pardon my language) I missed you. HOORAY! -Jen