ok I am reallllly confused, I keep reading how people have their first episode of what looks like MS and then they may or may not have another. how this temporoary loss of feeling or blindness or however it presents may go away and never come back again. WTF? my numbness has been going on for 8 or 9 months and has become pretty much a daily part of my life. what the hell is this? the worlds longest exacerbation? no....I am at a loss. this shit is supposed to be transient in the begining..... so someone please explain to me how someone with nothing on her MRIs has daily symptoms? everything else aside, all the little buggies and zaps and spasms and pain and and and ..... I have had numbness in my left hand and foot EVERYDAY and now am getting it in my right hand and foot since.... well at least for the last 2 months. so how the hell do they figure that you have this cut and dry disease process that everyone follows and that dx should be the same. ok, so help me God I hope they figure out whats wrong with me before it does permanent damage or outright kills me. I have googled until I cant google anymore and cant find anything else that matches my symptoms. so what now, I know , I know wait for the results to all my tests..... lemme tell ya sumthin, they are all going to be normal, just like evryother test that has ever been done any other time I have been ill and I am going to spend the rest of my life chasing...not a cure but a f**king disease!!!! this is absolutely ridiculous! Ok, how as a physician can you just send someone back out into the world over and over and over again not being able to feel their own foot or hand? I am just a little confused and a bit angry at this point. if I could have 1 day to forget about this shit , it would be really helpful, then at least my body and mind could join my doctors in denial.
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sorry you are feeling so bad,if live with tingling , burning , numbness, pain walking problems every day . i just hope that some day they will find something that will help us all. and i thank most of us feel that way. just anything that give us hope.
you know back in i think it was around 2003 when i was explaining the tingly numbness feeling to my epilepsy neuro....grin... his explaination...keeping in mind he had two MRI\'s just had not read them yet...rofl.... was to eat a banana a day...rofl....
yep you just have to love the medical field dont you hon....
just keep the faith that they will find some answers with these latest tests that they have run on you... this may take one step at a time..with some people it is like that.... others it takes a simple mri... but alas...smile..we are here for you to vent to anytime...baybee...so vent away...
hugs
heather
Lorr: I watched my poor mommy go through this for years, them tellingher that nothing was wrong with her....It was horrible. I feel so bad for what you are goingthrough right now. Eventually , she did get the diagnoses that she should hve had many years before. I hope that you dont have to wait much longer sweety, your an awesome person and deserve better than this. Pink Kim
Hi Rbear66, this is pretty much the same with my Mum - I was 9 when a paediatrician finally diagnosed her! (he was out GP-had leg removed & couldn\'t operate for more than half-hour, so became a family Dr.) But he had nothing to go on - and even then nobody had heard of it! There was no treatment, except for Vit.B12 injections. There were non of the modern diagnostic things. In the 90\'s I read that they\'d discovered a way of testing eyes - slight diff. in rapidity of closure of eyes when challenged - have you heard of this? But I\'ve been told it is a difficult disease to diagnose, as it mimics other neuro. ones. Hope you get rest of results quick smart now, JaneD.
Sorry to hear you are having a hard time. When I was having problems I informed my chiro and he said it sounds like ms. So I called the society and found a dr they recommended. Don\'t know if you ask them for help yet by what the heck! Blessings!
My numbness on my left side has never went away and it\'s been 7 months since my last relapse, so you aren\'t crazy. I can barely feel my left foot when I walk on it, so I completely understand how you just learn to live with it. I\'m so sorry for how you are being treated by your doctors. I can\'t imagine how hard it is for you. My thoughts are with you!
I know the feeling, like bonster said in her journal, funny we would pray for lesions! I do. I know that sounds funny. . .but, it\'s better then not having an answer, especially when it\'s right in front of you! Stay strong my friend!
I mean she put it in my journal! LOL. . .cognitive issues! hehehe
I know.Ridiculous. I think they believe they\'re protecting us, or themselves, or something. Hang in there....I know it sounds trite, but what else can you do? You have the spirit to fight, I feel that, so use it Sweetheart, and make some noise. I want to hear you in California!!!! LOL -Jen
I\'m so sorry you are going through this. I can appreciate the frustration. Try to stay calm and focus..easier said than done. Stay on top of it and do not let the docs have the upper hand. Stay strong.
Lorr, sorry your having a bad time. You would think drs. would be able to do better. they have a lot of good ones out there you just have to find them. I will continue to pray for you. hope you feel better. hey and don\'t work yourself to death. lol Lots of love kim