It has been a bad couple of months. My health problems are getting worse. It was explained(sorry something happen to the rest of this I will try again)
The chemo & steroids are causing lots of health problems. My irregular heart beat is worse they had to increase my heart med. Now I am dizzy most of the time. I have put on allot of fluid. I got a weird rash on my feet a few weeks back. I was told it was from the veins in my legs not working right. Now they are using "cobands" on them (a tight wrap) to squish out the fluid. After they finish squishing out the fluid I will have stockings made for me to keep the fluid out.
I can not have anymore steroids b/c of the problems so now the paralysis is slowly coming back. The numbness is getting worse. Sometimes it is very hard to move. I have stopped physio so not to tire myself out. I am having allot spasms, painful spasms. Muscle tightness. I am slowly getting worse. I try to stay positive but it is hard to do so some days.
I had cognitive testing done. I am told the speed which I think is not so good. Attention is bad memory is bad and the ability to do more then one thing at a time is bad. Or just getting bad. The doc is going to write up a report for the nurses and other staff. We are working on things to help me function better.
I am going home for one night this weekend. I am looking forward to it. Spending time with Bruce & Shadow.
The chemo & steroids are causing lots of health problems. My irregular heart beat is worse they had to increase my heart med. Now I am dizzy most of the time. I have put on allot of fluid. I got a weird rash on my feet a few weeks back. I was told it was from the veins in my legs not working right. Now they are using "cobands" on them (a tight wrap) to squish out the fluid. After they finish squishing out the fluid I will have stockings made for me to keep the fluid out.
I can not have anymore steroids b/c of the problems so now the paralysis is slowly coming back. The numbness is getting worse. Sometimes it is very hard to move. I have stopped physio so not to tire myself out. I am having allot spasms, painful spasms. Muscle tightness. I am slowly getting worse. I try to stay positive but it is hard to do so some days.
I had cognitive testing done. I am told the speed which I think is not so good. Attention is bad memory is bad and the ability to do more then one thing at a time is bad. Or just getting bad. The doc is going to write up a report for the nurses and other staff. We are working on things to help me function better.
I am going home for one night this weekend. I am looking forward to it. Spending time with Bruce & Shadow.
Replies
So sorry to hear this. Please know I am thinking of you and praying.
Me too. Hopefully there are cooler temps on the way. Remember that you are in my thoughts and prayers always.
Peace, Love and Hugs
I am sorry for your health.Want to let you no that ds is here for you.Chuck
We know that these are \"critical times, hard to deal with\". I know the visit with Bruce and Shadow will be a welcome one. Every little bit of a \"normal\" life is so sweet. I\'m glad you will have this time together. You all need it.
Gentle hugs and joined at the heart, Linda
Thinking of and praying for you Kayce.... know we are all out here for you. Hope you had a nice evening at home with Bruce! Stay strong girl!! love ya!