PAIN!!!!!
Pain, Horrible pain. I can not believe how much I hurt. My pain med's were changed, I had trouble with an upset tummy so I asked for them to be reduced until it went away. At the time the long acting was not holding for the 12 hrs. My doc was going to increase them but I wanted them lowered. I did not think I could keep them down. Now my tummy is fine but I am in agoney. Now I have to wait until Monday to get them increased. I do have quick acting but it seems not to work. That I do not understand. He lower two doses by 3 mg for a total of 6 mg daily. But I am taking way more than that in breakthroughs. I asked the dosing is the same one just last longer then the other. I take 3 mg BT, it does nothing so two hrs later take another 3 mg after a hour the pain is no better. I was wondering if I left it too long and it will take a few doses to get it under control. I do not know how that happens, I get busy and the pain sneaks up on me.
Most of the pain (from the waist down) is not from the MS. My L3 & 4 are 90% gone and what is left is prolapsed (gone towards my spinal cord). The pain feels like boiling hot water being poured over my low back, butt, and legs. Even in the mornings when they wash me it felt like my whole legs had no skin just raw. The wash cloth felt like sandpaper.
Now I just have to get through the weekend. I had a terriable thought, what if the pain is just getting worse and has nothing to do with the lower dose. You would think that it would have happened the day or the next if it was due to that. But at least here they do not let you be in pain. At home the doc's do not like to give you pain pills. That all treat you like a druggy. My MS doc did not he told me that 60% of MS patients are in tonnes of pain. He said that the MS clinic is like a pain clinic.
Typing hurts me in the upper back so I think I will spend the weekend reading. But last night I had to stop b/c of the pain in my upper back. I just have to remember that pain is temperary.
Most of the pain (from the waist down) is not from the MS. My L3 & 4 are 90% gone and what is left is prolapsed (gone towards my spinal cord). The pain feels like boiling hot water being poured over my low back, butt, and legs. Even in the mornings when they wash me it felt like my whole legs had no skin just raw. The wash cloth felt like sandpaper.
Now I just have to get through the weekend. I had a terriable thought, what if the pain is just getting worse and has nothing to do with the lower dose. You would think that it would have happened the day or the next if it was due to that. But at least here they do not let you be in pain. At home the doc's do not like to give you pain pills. That all treat you like a druggy. My MS doc did not he told me that 60% of MS patients are in tonnes of pain. He said that the MS clinic is like a pain clinic.
Typing hurts me in the upper back so I think I will spend the weekend reading. But last night I had to stop b/c of the pain in my upper back. I just have to remember that pain is temperary.
Replies
oh Kayce, my heart goes out to you. I understand your pain, and have been in the same situation myself. It is never easy to change pain meds, and doing so over a weekend when there is no medical care available is not the best scenario. I also had been admitted into the hospital wherein they do not prescribe my pain medication so they made a substitute which didn\'t work either. The experiences were ones that I will remember the rest of my life so my heart goes out to you.
Yes, your pain can get so strong from not adequately managing your pain via medication that all medications being given won\'t help. It\'s like you cannot catch-up with the pain medication being given. I hope I\'m explaining myself here, but the bottom line is the pain gets so bad and out of control, nothing works.
My thoughts and prayers will be with you Kayce. I\'m so sorry you have to go through this.
All I can say is how sorry I am and I know this weekend will seem like forever. You know that prayers have already been said for you. Try to rest and not do those things that will make the pain worse. We will understand.
Gentle hugs and joined at the heart, Linda