I guess I was wrong the chemo was not working, at least it was the it that made me able to move my arms and legs, and work on my strength. It did help the steriods work better. I am numb, quit numb, it is getting hard to move my legs. Having spasms in legs again.
In physio I have been doing the "bike" for ten min's, doing well at it. We were going to add arm pullyes. I have physio mon/wed/fri not to over do it. They say when building muscle it is best to have a rest day. They do not want to tire me out. Today it is hard to move my legs, it is a good thing that physio is tomorrow, I couldn't do the bike today if I wanted to. Hopefully I will beable to do it tomorrow, hopefully tomorrow is a better day. The last week I have been tired I thought I was over doing it, but it seems like it was the first sign of the steriods wairing off. I have been so tired sleeping more and doing less have not helped a whole lot. I am just so tired, today I have not even gotten out of bed. Slept all morning, I am going to try to get up soon, I seem to be a bit more awake.
While things are hard I am not down. It is a learning experince. Now I know I can do well on the steriods. When last saw the MS Doc he was going to put me on IV steriods every 4 weeks. We thought it was the chemo that made me better, but we can do the steriods. If I can rehab enough to the point of standing and walking 40 M or 120 F I can go on a MS drug to prevent me from getting worse. So while not doing so good at present still hopefull
In physio I have been doing the "bike" for ten min's, doing well at it. We were going to add arm pullyes. I have physio mon/wed/fri not to over do it. They say when building muscle it is best to have a rest day. They do not want to tire me out. Today it is hard to move my legs, it is a good thing that physio is tomorrow, I couldn't do the bike today if I wanted to. Hopefully I will beable to do it tomorrow, hopefully tomorrow is a better day. The last week I have been tired I thought I was over doing it, but it seems like it was the first sign of the steriods wairing off. I have been so tired sleeping more and doing less have not helped a whole lot. I am just so tired, today I have not even gotten out of bed. Slept all morning, I am going to try to get up soon, I seem to be a bit more awake.
While things are hard I am not down. It is a learning experince. Now I know I can do well on the steriods. When last saw the MS Doc he was going to put me on IV steriods every 4 weeks. We thought it was the chemo that made me better, but we can do the steriods. If I can rehab enough to the point of standing and walking 40 M or 120 F I can go on a MS drug to prevent me from getting worse. So while not doing so good at present still hopefull
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It is so good to see you keeping a positive attitude. We have to. We can\'t let this MonSter think he is winning. Hang in there. Gentle hugs for a better tomorrow.
why are you not taking anything for your ms and take the iv steroids if they work and you can do that girl walk that 12o f so then they will help you /why did you do chemo do you have cancer or is it for the ms .god see what you are doing and he is going to help you get up and just get out of there show them what you can do love ya and your doing great keep it up girl have a great day love ya april
Kayce,
You know how much I believe in you, I was getting worried you were going to overdo it, I can\'t even imagine how great it was to even get the feeling back and I was so happy and proud for you. How do they say it slow your roll girl. I really want you to take it easy for a bit and I know how hard it is when you get these feelings back after so long. You know I just want the best for you as we all do. So please try to slow down and listen to your body, I know you already know that but backup is always good. I will pray that you get better but only in small bits and pray that you do no more than your body will allow, you know I want the best for you and always have since we started talking and I\'m sure it is the chemo that is giving you all the progress.I wish the best for you
Hugs
Dave