I have been tired the last few days. So I have been taking it easy. Making sure I rest enough. I was told I could get worse if I do. That is one of the hardest things for me to do. I am a fighter, I push myself, that is how I got through the last 10 yrs. They are telling me if I push too hard I can damage myself. I guess they are right I went home last weekend and I transfered from my chair to the couch to the comode and back to the couch, then later back to my chair. I was very tired, later that night while in bed I reached over to get something and I tore a muscle in my back. Later when I was talking to physio she thought I over did it. The muscle is slowly getting better. Another thing I have to learn. With this new body I have to learn to do every thing again. Some days it is filled with excitment, I can do more and more each day. Other days I have to take it easy.
It is hard some days not knowing what to exspect. What can I do this day, what can't I do. The numbness is slowly getting worse, but I can still move and I still have good strength. I am hoping I can last until I get the next dose of chemo. Trying to live each day and not focus on what may happen if it continues to get worse, it is hard not to get down when you are sliding back into parolisis. I can do my own bowel care, feed myself, wash part of myself, it is a great feeling to be moving and more independant.
I find it funny, how afraid I was of chemo. Last Jan. I would not consider taking it. It could do harm to my body, but now that my breathing is effected, I could stop breathing. So I decided that it was worth the risk, so far it is ok. I am going through testing to make sure there is no damage from the first dose.
Because of being so tired I am not going home as much as I was or want to. It is also getting cold. The warm weather (indian summer) is over and it is getting below freezing every night. Thsere is also a cold wind blowing every day, too cold to be going in a wheelchair for more than 30 mins.
It is hot on my floor, my room is not too bad, I have my window open and a fan on. Some of the nurses like my room as it is the only cool one. I am still eating cups of ice chips to keep cool, I was hoping it would cool off as it got cooler but the nurses tell me this floor is hot all winter.
I guess what I am going through is part of MS, being tired, and getting tired fast when doing things. Going to have to ask others how they cope with it.
It is hard some days not knowing what to exspect. What can I do this day, what can't I do. The numbness is slowly getting worse, but I can still move and I still have good strength. I am hoping I can last until I get the next dose of chemo. Trying to live each day and not focus on what may happen if it continues to get worse, it is hard not to get down when you are sliding back into parolisis. I can do my own bowel care, feed myself, wash part of myself, it is a great feeling to be moving and more independant.
I find it funny, how afraid I was of chemo. Last Jan. I would not consider taking it. It could do harm to my body, but now that my breathing is effected, I could stop breathing. So I decided that it was worth the risk, so far it is ok. I am going through testing to make sure there is no damage from the first dose.
Because of being so tired I am not going home as much as I was or want to. It is also getting cold. The warm weather (indian summer) is over and it is getting below freezing every night. Thsere is also a cold wind blowing every day, too cold to be going in a wheelchair for more than 30 mins.
It is hot on my floor, my room is not too bad, I have my window open and a fan on. Some of the nurses like my room as it is the only cool one. I am still eating cups of ice chips to keep cool, I was hoping it would cool off as it got cooler but the nurses tell me this floor is hot all winter.
I guess what I am going through is part of MS, being tired, and getting tired fast when doing things. Going to have to ask others how they cope with it.
Replies
I know it\'s hard not to push on through when you haven\'t been able to do what you want for so long but for now, you just need to listen to your body and go with the flow. Rest when it tells you to and try to stay as cool as you can. We are having the cold winds here too. I\'m already anxious for spring. Gentle hugs. Linda
during my recovery I too am guilty of overdoing it when I should have been allowing my body to heal itself, but when we get that first taste of freedom and things to come, much easier said than done. I did learn to listen to my body though, pace myself and take advantage of strong days and rest on weak ones.
one thing I found helpful on my rest days was to get a yoga mat and do a few very light stretches, sitting indian style, laying on my back slowly rising my legs, actually doing everything slowly.... its harder to do when we are numb as you don\'t feel the relief from the stretches as much but I always pushed ahead knowing that my muscles were better off.
I also remember burning up in the slightest heat and going through ms Armageddon, but now I live in the steamy hot tropics, grateful I can handle the heat once again. hang in there mate the body is an amazing machine that can, will, and does heal itself, your living proof, wishing you the continued success you so deserve.