Vulvar Cancer Support Group
Cancer of the vulva (also known as vulvar cancer) most often affects the inner edges of the labia majora or the labia minora. If you or someone you know has been diagnosed with vulvar cancer, use this community to talk about your experiences and gain support through other people going through a similar struggle. You're not alone
Since I was diagnosed with vulvar cancer 11 days ago life is drastically different. I discovered the tiny sore spot that grew to the size of a dime in 3 short months. I carry the HPV virus and had a hysterectomy in 2000 due to the pre-cervical cancer that HPV caused; I believe HPV is the culprit of my vulvar cancer. After reading the posts on this site and discovering a new lesion yesterday, I am feeling down. My insurance and medical office workers are terribly unprofessional, unsympathetic, and they are dragging their feet in getting me the treatment I need. I want to beat this cancer, I want to live, I want to believe in a great big GOD who heals all my diseases and doctors who care......maybe tomorrow will be better. For now I have put my dream career of being an interior designer on hold because I am not sure how I will feel or how the treatments will conflict with work. I received my diploma in Interior design and was diagnosed with vulvar cancer a few days later. I must be brave in the face of this news, I wish for all of you healing, strength, comfort & love
Sincerely
Danielle
Vulvar cancer is rare:
In the United States, vulvar cancer accounts for about 4% of cancers of the female reproductive organs and 0.6% of all cancers in women. In the United States, women have a 1 in 333 chance of developing vulvar cancer at some point during their life.
The American Cancer Society's estimates for vulvar cancer in the United States for 2015 are:
About 5,150 cancers of the vulva will be diagnosed About 1,080 women will die of this cancer www.cancer.org
Sincerely
Danielle
Vulvar cancer is rare:
In the United States, vulvar cancer accounts for about 4% of cancers of the female reproductive organs and 0.6% of all cancers in women. In the United States, women have a 1 in 333 chance of developing vulvar cancer at some point during their life.
The American Cancer Society's estimates for vulvar cancer in the United States for 2015 are:
About 5,150 cancers of the vulva will be diagnosed About 1,080 women will die of this cancer www.cancer.org
I don't know if it's rare or not, but people don't like to talk about it and so there isn't a lot of information out there.
I have tested negative for HPV but still got the cancer.
I couldn't imagine going through this without a sensitive team of medical professionals.
You can get the love and support here. Stay positive. hugs
Thank you for the kind, sincere, replies. I had surgery on March 1st to remove the cancer. I won't know for a few weeks if my lymph nodes are involved but the Dr. is 90 % sure c/o frozen section testing at the time of my surgery that they are not. I am home healing and relieved that the cancer has been removed because the deeper it grows the more it spreads. I am amazed at the clean job the Dr. did removing all the cancer and precancerous spots. She stitched it all up with one tidy line in the center of things. I was afraid to look because it felt strange but was relieved at what I found. I was informed that this cancer will possibly return but I am confident that it will be removed and that I will be ok. I was not prepared for the grieving that takes place though...it comes in waves of anger, sadness, feeling alone, but these feelings are manageable and I feel it is helpful to share that because when this cancer strikes it brings with it many unpleasantries. I hope my words help someone, I know your words have helped me. Thank you & God Bless you
Danielle
Although the wound healed up nicely, for some reason I still carry terrible pain and I believe it must have activated some nerves that were quiet before, possibly related to my fibromyalgia.
March on, camel toe-less pride