Vulvar Cancer Support Group

Cancer of the vulva (also known as vulvar cancer) most often affects the inner edges of the labia majora or the labia minora. If you or someone you know has been diagnosed with vulvar cancer, use this community to talk about your experiences and gain support through other people going through a similar struggle. You're not alone

193 Members

228 Posts

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New Post

Newly diagnosed

Posted by: lindaby131

Posted: 10/31/2021

0

Hello, I am newly diagnosed August 2021, Stage4a vulvar cancer. Surgery resulted in a permanent colostomy as tumor was... READ MORE
Immunotherapy

Posted by: TigerLady1957

Posted: 09/02/2021

0

I have had vulvar cancer since 2015. Had lesions several times. I had radiation but lesions came back. I had a... READ MORE
how do you deal with the waiting to see doctors

Posted by: snowland

Posted: 09/01/2021

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I'm so frustrated / scared. I'm having issues and family doctor says it highly possible that my vulvar spots are... READ MORE
Paget's Disease of the Vulvar

Posted by: deleted_user

Last Reply: topcat61 07/02/2021

16

Hi, I am new to the group. Just diagnosed last week with Paget's Disease of the Vulvar. I am a 38 year old mum with a... READ MORE
Keratinizing squamous cell carcinoma

Posted by: TigerLily88

Last Reply: Binkee008 02/23/2021

1

Diagnosed 8-19-19, going in for surgery 8-29-19. I'm absolutely terrified because I have no idea what to expect during... READ MORE
VIN3

Posted by: Nova17

Last Reply: Binkee008 02/23/2021

4

I noticed lesions months ago and the rapid spreading, but my doctor's disregarded my requests for further exams. Well... READ MORE
Invasive squamous cell carcinoma

Posted by: ShannonC

Last Reply: Binkee008 02/23/2021

3

Hi. It's nice to know did there's a support group for Vulvar cancer. I live in North Carolina and not many people have... READ MORE
Squamous Cell Carcinoma (vulvar cancer)

Posted by: BonnieB

Last Reply: Binkee008 02/23/2021

1

I'm so glad to find this group....our cancer is not common so it's hard to find anyone who has had it or has it and... READ MORE
Post Surgery Care for Partial Simple Vulvectomy

Posted by: deleted_user

Last Reply: Binkee008 02/23/2021

5

I was diagnosed with VIN3 in the posterior fourchette(rear part of vaginal opening) into the perineum, and will have a... READ MORE
Vulvar Melanoma

Posted by: Ladietechie

Last Reply: BonnieB 10/24/2020

1

Hi, I wonder if there is anyone out there that has had this diagnosis. It is a rare cancer. About a year ago, I had a... READ MORE
Pagets Disease with cancer

Posted by: Nangy

Last Reply: Meditator 06/26/2020

3

Am going into hospital shortly to have biopsys on my vulva - not sure what is going on this time. Previously had big... READ MORE
Pagets disease of the Vulva

Posted by: nelo

Last Reply: birdieandsister 02/09/2019

1

Diagnosed with Pagets disease of the Vulva 5 years ago. Had a radical vulvectomy.Pagets has returned. The itching and... READ MORE
Vin 3 Diagnosis

Posted by: LYNL1963

Last Reply: Callieblue 02/09/2019

2

I am a 55 year old female. juat diagnosed with Vin 3. I was told I need to have a vulvar excision. My GYN found a... READ MORE
Before And After My Vulvectomy

Posted by: EM503

Last Reply: Canilive 06/21/2018

2

I am glad to find a chatroom for Vulvar Cancer/Vulvectomy Surgery issues. I saw a lady post questions asking if... READ MORE
recent VIN diagnosis

Posted by: staceyt616

Posted: 06/03/2018

0

Hello everyone. im so happy to have found this group. Im hoping for some insight from those who have lived it.I have... READ MORE