Hi, I do have Lichen Schlerosis, but no cancer. I've had it for about 4 or 5 years, I use clob 2X weekly to control the itch. I've been ok, but I also have vuvydynia which is a worse problem becasue it feels like a rope burn, has gotten worse, and I have to use lidocaine to be able to have sex. Lately, that hasn't even worked. Very depressing.

Hi, same boat, vulvar cancer too and ITCH!!! I had never known there could be an itch so bad as cancer, and the burn.. this has Super Sucked. But, I've found a few things that help.

I've been trying the craziest things to help relieve some of these symptoms and oddly, what seems to be the best so far and I swear that even some of the spots are lightening and the area is healing but, I've been putting coconut oil down there, mixed with about 7 drops of dragon's blood and then about an inch of leaf cut off from an aloe vera plant.

A very odd mixture but, it sure seems to help. The doctor gave me a steroid cream for the itch but,, I'm not thrilled with using steroids let alone anything chemical, especially down there! :O

I'm trying to go as natural as possible and shortly I'll post everything I'm taking but, I've decided to take firm stance and leave the docs and their pharmacopia out of this.

I've heard Way to many horror stories of women having their
treatments and their treatments fail. Having the vulva cut off? Oh Hell No! I'm sorry but, i have a hard time picturing any woman agreeing to this.

I've heard that even their medical instruments have been known to spread the virus around which, it does make sense. I'm NOT trying to scare anyone into changing their course of treatment but, I am all for women taking a second breath, stopping and considering all of the other alternatives, and doing their research before they step forward into something that I've seen so many women regret later on *raises hand to that too*

I took their first advice and had a partial hysterectomy, huge mistake there too. But there's so much promising research out there of people that cured themselves, all by themselves and *raises hand* From my first post here, to now, I am honestly noticing improvements and even lessening of cancer growth.

Please please don't give up hope and, with a few changes, it really does get better.

Above anything too, HALT ALL SUGAR! No joke. I've noticed that every day eating some sugar, the symptoms were horrible, even one stupid cookie >,< this makes me so upset because I use to love cookies and donuts and cakes, oh my... and oreos? Oh how you will be missed *cries* but,,, im so serious... you have to stop eating all sugar to get the itch and rope burns to ease up... and water like a banshee... drink it all day long if you can.. the more water the better,, and pure water.. please get water filters... Soo much more i want to say but, this just kicked into overdrive, writing up a post and posting everything that i've found and im so sorry for this wall of,,, i dunno, psychosis but,, this is going to be a mission, to hopefully prevent any more women from making decisions that they later regretted...

Sidenote, the dragon's blood, make sure it is Not the tincture with alcohol... there's organic ones out there. The one I use is from raw food world but, please just make sure whichever one you use, and all remedies for that matter, please make sure they're organic and natural as possible, no chemicals, no additives, no colorings....

cancer thrives on sugar and who else knows ts what but, removing all chemicals as much as possible, is what it takes, and the purest ingredients, whole foods, organic foods and juices... a change of your being really.... green tea too!!! but,,,

I forgot one of the biggest! In that coconut mix,,, add about a teaspoon or two of the boiled Graviola tea,,, which is:

Take 9-15 organic graviola leaves, graviola is a HUGE cancer battler... i take 6K MG every day too, 2 in morning, 2 in afternoon, 2 at night. Organic graviola pills,,, but, on to the tea

Take 6 cups pure water (as pure as you can get), even filtered tap water, bottled or such...

add 9-15 graviola leaves, boil 10 minutes, simmer/let steep for over an hour,, i just put a lid on the pot and set on really low for about an hour, hour and a half,,, then drink that throughout the day, every day..... mixing it with frozen organic raspberries is YUMMY! ^_^ but,, i swear i can see this making a difference, in the short few weeks I've started this regimine...

but yes, add a teaspoon or two with a few teaspoons organic coconut oil, 7 drops of organic dragon's blood, an inch of an aloe plant (peel the plant section open and scrape off the inside into this mixture) then just keep this concoction in the bathroom, preferably in a tiny glass container, keep it covered, then whenever you have to go to the bathroom, slather this mix all over down there, you can even insert it but, Please be careful if you insert, as we know the tissue gets so tender, and it can tear easier too,, but, if you don't mind your own fingers,, put a goop of it on the tip, insert gently as high as you can, and,,, although you may not like it,, going without underwear will be your best option too

dresses and skirts will now be the choice of clothing, because sadly with this type of cancer, wearing underwear will make it warm, and warmth adds to the itchiness... sooo, ive had to forego my beloved jeans >,< and now wear only skirts and commando... lol do be careful in the wind,, long skirts will now be your friend too, you don't wanna be flashing the neighborhood ^_^

Hi, I have had Lichen Sclerosus for years, and 5 years ago was diagnosed with stage 2 vulvar cancer. I had a vulvectomy with some lymph node involvement, meaning 6 weeks of recovery at home but no radiation or chemo. Despite regular checkups(and mirror checks!), I was again diagnosed with vulvar cancer this summer and had additional vulvar surgery two weeks ago. Please don't freak out over any of this, even if it sounds daunting! The key is to get checked. If your ob-gyn is "on the fence," go to a dermatologist. In both cases, it was my derm who referred me to an obgyn/onc. There are discomforts and adjustments, but hey, I am alive, nothing spread, and I have a great prognosis. One of my drs said there might be a link with lichen sclerosus, so a key is to press for biopsies if you have a sore there that doesn't seem to be healing. Good Luck--try not to worry, and be proactive with monitoring that area.