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/ UNCENSORED BipolarBears 18 and over ONLY!! Support Group

When you've lost your mind

gothfemmedyke
gothfemmedyke
When you've totally and completely lost your mind, is there any hope that you can find it again? The doctors have given up on me. They say nothing is going to fix me. I cycle so many times a day I can't keep track. Did you know that every time you have an episode, you get a little bit of brain damage? So just imagine if you're bouncing up and down all day long, having 10+ "episodes" a day, the amount of brain damage being done daily. My partner says it's like I have Alzheimer's. She can see the deterioration. Everyone else can too. They treat me like a Faberge egg. My friends don't come to visit anymore. I think it huts them to watch me wasting away in front of their eyes, both mentally and physically. It's like watching someone die of a terminal disease. Am I terminal? Is there any hope for recovery when the disease has progressed so far? There is a lot of information for people who have just been diagnoses, but little is mentioned about those whom treatment has not been successful for and the long-term effects of BP for those patients. Will I ever have a satisfactory quality of life, or am I doomed to be permanently institutionalized by 40?
deleted_user
deleted_user
There has got to be hope for you, Girl. Always.
This disease is nasty, and you sound like you have it at it's worst,
but it is treatable. I've never yet heard of a case that wasn't.
If the doctors you're seeing aren't helping, ditch them.
Find the ones that will.
You are NOT terminal.
You don't have to suffer this way.
deleted_user
deleted_user
I lost my mind for 2 months and they managed to find meds for me ..I may take a lot of meds,but it beats liveing like a hermit..My friends are starting to come back around and I`m getting out more..Like she said there is always hope ..Find other docs..There is shock theropy for the extremly bad cases of BP..I only know of one successful person..I would not recoment that ..You lose too much long term memory..Please seek other help don`t give up...
deleted_user
deleted_user
"My partner says it's like I have Alzheimer's. She can see the deterioration."

You aint the only one, gothfemmedyke, hang in there; there's always hope for recovery
gothfemmedyke
gothfemmedyke
I found an article in a medical journal that was discussing the brain damage that occurs with each BP episode. It gave me hope, because it explained that the area of the brain that is damaged by the episodes is also the only part of the brain that can rejuvenate lost brain cells. So studies have shown that with adequate mood stabilizing treatment the brain damage can stop and even reverse itself. After reading that article, my partner and I started making a holistic treatment plan for me, because I refuse to be a lost cause!
deleted_user
deleted_user
How good to hear that determination girlie :)) Never say never xxx
deleted_user
deleted_user
I feel your pain, my friend. I've recently been warned by my doctor that I myself face permanent institutionalization if I continue these episodes. I cannot imagine what it must be like to cycle so many times throughout a given day. My cycles are prominently in the spring and summer and what hurts me the most is seeing my loved ones helplessly and hopelessly watching me uncontrollably spiral. We cannot help it. It is beyond our control and this thought brings me to tears sometimes. But trust me there is hope for people like us. We just need to keep trying
deleted_user
deleted_user
i used to have a key chain that said, of all the things i have lost, i miss my mind the most......
deleted_user
deleted_user
You are not a lost cause, there is definitely hope for you. I don't if I had it too but there were days when I felt muy mood swung within minutes. But I just kept going, I didn't take off from work or participate in family stuff. I felt horrible and had constant negative nagging thoughts but I kept going. I am not out of the wood yet but I think I am better than a few months ago. Quality of life well that's another issue. I feel like I am doing things but not really enjoying them. Best wishes.
deleted_user
deleted_user
I'm so happy for you and your partner! I'm glad you guys are trying to beat the disease. awwww.
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