Trigeminal Neuralgia Support Group
Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.
I've been researching this on my own for a few months now. This seems to be the only answer to the sudden and extreme pain I have in my face and jaw. I'm wondering if anyone has any pointers in getting a dr to take you seriously about this? In my experience with trying to get chronic migraines treated, you're always treated as if you're just seeking pain meds. Truth is, I just want the pain to stop getting to the point where I consider shooting myself as the only option.
Rmhaines
Oh sweetness! I know exactly how you feel. I went 3 months of doctors going "eh" 0.o and dentists having no clue and three trips to the ER. Then finnaly a triage nurse diagnosed me. Funny right. But as far as getting a doc to take you seriously... just keep trying. And get into a neurologist asap!!! They are the only ones that can actually treat you anyway. Good luck!!!
beachiekeeen
Thank you, I love that I found this forum because I'm reading all these things and saying YES THATS SO ME! And while it doesn't take the pain away or let me sleep any longer than 9 minutes at a clip, it helps to know I'm not alone. Hopefully I'll get back to eating normally. Right now the pain is so bad I can't eat bagels, hard breads, pizza, all that stuff is off limits.
Roxiy
This is exactly how mine started. I went to an ENT because I thought that it was my salivary gland( my brother & uncle have both had cancer. I went through aot of doctors, and if it wasn' t for my husband, I would have probably offed myself. I just couldn't do that to him. I had to stop eating bagels, salad, etc. (Anything hard to chew would set ot off) Because this is so rare and a lot of people in the medical field have never heard of it, makes it really hard. Just move on to the next dr. if they do not believe you. O had my GP tell me to read, "The Mind Body Experience" because he thought it was all in my head. I had 7 different dentists in a year and a half and almost as many docors before I found someone who would listen to me and take a better look at my MRI. One of the dentost thought I had TMJ and hooked me up to electricity on my face (which was excruciating and expensive)There is a certain MRI they can do to be able to see if you have a blood vessel on that Trigeminal Nerve. I just had MVD 2 months ago after my second balloon compression. Do not give up, because you will eventually find someone who will help. Once you get a diagnoses, it will be a lot easier.
beachiekeeen
Thank you so much for your encouragement. Your story is so much like mine! I miss bagels so much. lol I live in NJ and visit friends in NYC often and they're always like LETS GET BAGELS!
BostonTN
I have chronic migraines with vertigo with TN. I would suggest bringing in printed materials regarding TN to your primary doctor and request a referral to a neurologist. The faster you start your prescription regemen will help your pain management. I wish you the best
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