Trigeminal Neuralgia Support Group
Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.
Does anyone else get woken up bu pain in the middle of the night? I take tegretol (ER and chewables) and a baclofen at bedtime...but for the past several weeks Ive been woken up with unbearable pain a couple of times a night, I crush up a tegretol or two and put it under my tongue and wait for relief. Eventually I get back to sleep only to be awoken 2 hours later.
Strangely during the day I'm fine. Granted I am on a lot of medication, but why is this happening only at night. I've tried sleeping with fewer blankets, with more blankets and it doesn't seem to make a difference.
Usually the tegretol works for me with some breakthrough when it's flaring up, but this is getting hard to take. Am looking into nerve block as a next step as I really don't like being so medicated and still having pain,
Just curious if this happens to anyone else and if you've figured out why??
Strangely during the day I'm fine. Granted I am on a lot of medication, but why is this happening only at night. I've tried sleeping with fewer blankets, with more blankets and it doesn't seem to make a difference.
Usually the tegretol works for me with some breakthrough when it's flaring up, but this is getting hard to take. Am looking into nerve block as a next step as I really don't like being so medicated and still having pain,
Just curious if this happens to anyone else and if you've figured out why??
That normally happens to me when I lay down because my head feels like there is more pressure and I always have trouble sleeping. I have to sleep on my side due to a back injury so during the night I flip from side to side. It feels like there is more compression on my nerve when I sleep. I take Amtryptaline at bedtime for pain. I don't know if it will help, but it has helped me. Good Luck I hope you get some relief so you may sleep.