Trigeminal Neuralgia Support Group

Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.

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Brain & Nervous System
/ Trigeminal Neuralgia Support Group

My TN

Caseboyl23839
Caseboyl23839

I am 15 and was diagnosed with trigeminal neuralgia in June of this year. I have yet to go to a neurologist, but from my pediatrician diagnosis and my mom's and sisters(They both have TN) they say that it is what I have. I was wondering if anyone's neurologist said that their TN could be hereditary. And I have had several attacks and the only medication that seems to help me is Prednisone. I have been on tramadol since June and it doesn't help me at all and my pediatrician doesn't want to give me anything else. I have been in pain since Tuesday and I can't stand it anymore. Could someone please give me some advice. Thanks in advance

Mellylou
Mellylou
Hereditary hmm.great
BostonTN
BostonTN
Hi, Most of the stories I've read the medication most people have taken that works is Carbamazepine the generic of Tegretol. I don't know if it's hereditary. Once you've seen the Neurologist you'll get a better understanding of which medication combination will work for you. What works for one may not work on another patient. Good luck.... I hope today was better than yesterday.
Caseboyl23839
Caseboyl23839
I had an MRI done a week ago and I got the results of it yesterday. I found out that I have an abnormal blood vessel aka arteriovenous malformation(AVM) in my right temple. I was put on carbamazepine and baclofen a few weeks ago and both of them are helping. I have yet to talk to my doctor about the AVM and I would like it if you guys would pray for me because I'm really scared and freaking out.
yardlover
yardlover
It is very hereditary in my family. Take carabamazepine, if it stops the pain , you can pretty much tell it is trigeminal neuralgia. You might see a neurosurgeon about a balloon rhyzomtomy procedure, Good luck to you!
Caseboyl23839
Caseboyl23839
I saw my doctor yesterday about what he thinks is an AVM. It turns out that it is not in my right temple...it is in the muscle in the right side of my face. He sent me to another neuro doctor at the University of Maryland. My neurologist told me that I would probably need an angiogram to check the blood flow. I'm not really sure what to expect from the test but it still scares me to death because I know two risks of it is heart attack and stroke.