Trigeminal Neuralgia Support Group
Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.
aprilb42
I had shingles last year in the area above my right eyebrow, within the right eyebrow and on the right side of my scalp. I have been diagnosed with Post Herpetic Neuralgia, but recnetly have been having some twitching, electrical sensations under my right eye and upper right cheek almost like spasms. This happens when I movemy head sometimes, touch the area around this eye or cheek. I do not have the terrible shock like pains with these twitches that it seems is typical of classis TN, but have experienced these shock types of pains at times mainly in my right forhead. I am in terrible pain 24 hours a day and I am really concerned about these twitches or spasms. That is the best way I can describe them and I am very worried. I am on Neurontin, but have been able to only get up to about 1,200 to 1,500 per day and the last neuroligist I saw said I need to be at 1,800 at least for this type of pain. The neurontin at the dose I am taking is only slightly helpful, but not near enough. Does anyone else have these sorts of tingling and twiching like sensations around their eye and upper cheek area? Iam seeing a new neurologist, but couldn't get an appointment till the end of April, but I do see my primary care doctor Friday. I just need some relief from this pain. I am really scared about all these strange sensations I am feeling in my face. I would like to taper off the neurontin and try something else, but last time I tried it set off withdrawal symptoms even though my doctor said this wouldn't happen. I guess I tried to taper to fast. Any suggestion would be welcome.
Thanks,
April
Thanks,
April
deleted_user
hi there...i'm sorry to hear about your pain. I would recommend you google anne louise oaklander and read her publications on PHN. She is a nerve pain expert and her area of research is post herpetic neuralgia. She is in Boston if you live nearby. She usually recommends Nortriptyline for the pain of PHN. It's an older anti depressant which works by increasing the brain's pain relieving chemistries.
Join the Conversation
Posts You May Be Interested In
-
My 6mo twin DD's are EBF and just started rice cereal on the first. Everything has been going fine except this morning one of them had a diaper rash (lots of redness around her anus). I read this as one of the signs of an allergy. BUT I did just buy a different brand diaper yesterday (which they have used randomly before w/no issues). Do you think its the cereal or the diaper? Im ready to start...