I had shingles last year in the area above my right eyebrow, within the right eyebrow and on the right side of my scalp. I have been diagnosed with Post Herpetic Neuralgia, but recnetly have been having some twitching, electrical sensations under my right eye and upper right cheek almost like spasms. This happens when I movemy head sometimes, touch the area around this eye or cheek. I do not have the terrible shock like pains with these twitches that it seems is typical of classis TN, but have experienced these shock types of pains at times mainly in my right forhead. I am in terrible pain 24 hours a day and I am really concerned about these twitches or spasms. That is the best way I can describe them and I am very worried. I am on Neurontin, but have been able to only get up to about 1,200 to 1,500 per day and the last neuroligist I saw said I need to be at 1,800 at least for this type of pain. The neurontin at the dose I am taking is only slightly helpful, but not near enough. Does anyone else have these sorts of tingling and twiching like sensations around their eye and upper cheek area? Iam seeing a new neurologist, but couldn't get an appointment till the end of April, but I do see my primary care doctor Friday. I just need some relief from this pain. I am really scared about all these strange sensations I am feeling in my face. I would like to taper off the neurontin and try something else, but last time I tried it set off withdrawal symptoms even though my doctor said this wouldn't happen. I guess I tried to taper to fast. Any suggestion would be welcome.
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