Trigeminal Neuralgia Support Group
Trigeminal neuralgia, or Tic Douloureux, is a neuropathic disorder of the trigeminal nerve that causes episodes of intense pain in the eyes, lips, nose, scalp, forehead, and jaw. Trigeminal neuralgia is considered by many to be among the most painful of conditions.
Hi, am I weird?
I have pretty good relief with the Gabapentin that I take and the Topiramate. But sometimes I get nerve pain, not just in the trigeminal nerve, but also from my neuropathy in my feet and some in my hands.
But before I go into anything "hard" like Tylenol 3 I will take a generic "Tylenol Ultra" and see how that helps. If it helps a little but not enough, then I will take a shot of hard liquor. A measured shot, and straight. I don't want anything too hard on my blood sugar level.
Anyway I find that it does really help with that electrical shooting tree or slicing type nerve pain.
I do worry about becoming dependant on taking a shot now and again. It could lead down a road I would not want to follow considering I really am not a "drinker". I really do not even drink socially. Most parties and such I do not drink. Only at something formal where there is wine with a meal for instance, or at something like a birthday party where they are offering a toast with single malt scotch.
Anyway. Are there others who get relief from even a single shot for a 3 to 6 hour time period?
I have pretty good relief with the Gabapentin that I take and the Topiramate. But sometimes I get nerve pain, not just in the trigeminal nerve, but also from my neuropathy in my feet and some in my hands.
But before I go into anything "hard" like Tylenol 3 I will take a generic "Tylenol Ultra" and see how that helps. If it helps a little but not enough, then I will take a shot of hard liquor. A measured shot, and straight. I don't want anything too hard on my blood sugar level.
Anyway I find that it does really help with that electrical shooting tree or slicing type nerve pain.
I do worry about becoming dependant on taking a shot now and again. It could lead down a road I would not want to follow considering I really am not a "drinker". I really do not even drink socially. Most parties and such I do not drink. Only at something formal where there is wine with a meal for instance, or at something like a birthday party where they are offering a toast with single malt scotch.
Anyway. Are there others who get relief from even a single shot for a 3 to 6 hour time period?
I would love a good shot of tequila but those days are over for me. I use to take a shot before bed when I was younger at like 23 it did help numb the pain but not now.
I have MS and any alcohol seems to intensify the symptoms. I read these others and am jealous that they can have a cocktail. Few things are more enjoyable to me than a drink of a good single malt scotch from time to time. Alas, it is not to be for me. It would be insulting if it helped my TN being unable to have a drink due to MS.
And, by the way Darrell... Yes, you are weird. We are all weird. We have a disease where we must convince those pertinent that we really do have major pain. Actually, its our situation that is weird.
Take Care
mikeh
It may be why many here also have the experience of the worsening.
I would consider what else you may be doing at the same time that may be helping, not being anywhere where the pain may be triggered, feeling drowsy so you would not notice it, or notice it as much, etc.
Also, my lightening type pains were very short limited. Anything I tried to do for them essentially had a coincidental benefit as the pain stopped on its own,
I know, for me, that sometimes when I think it is A that is helping it actually turns out to be B or C.
It sounds like you might also have diabetes (?) becuse of the neuropathy and your concern about your sugar level.
Have you talked with your doc about any problems using the liquor may cause you now or down the road?
I hope this is of some help.
Leej
I noticed on your profile that you had GERD. I would think the alchohol might be bad for your tummy. When we are in terrible pain and need SOMETHING - I think are a lot worse things than a shot of glenlivet, but I hope you eventually get a doctor to help out with some medicine that might have fewer side effects for you.
blessings,
Pat
So my advice is stay away, Keep trying something new.One of us will find something that will work. Lots of hugs.
Now I am almost completely weaned off of the Tegretol (200mg a day). I live in california and have a legal "MediCann" card. I am under the care of a real MD and have a prescribed amount to smoke each day. Smoking 2-3 good puffs 3 times a day makes me feel a lot better. It gives me energy and it makes the pain go away. Somehow it makes your brain defocus on the pain.
I am finding a link between hydration and my classic trigeminal neuralgia. I also get heart palipitations when I am dehydrated.
I have been drinking lots of water and my TN hasn't been bad. Has anyone else found this to be so?
I have been on a liquid diet for a couple of months because it hurts so horribly to eat. I have heard a connection about lowfat diet and TN.
All I have is darvocet & ice. I ice my trigeminal nerve & face a couple times a day. I can't drink but I am sure it would make me sicker than a dog!