Hello. I would say if you know what sets off his tic's then treating what the cause is would in theory keep his tics under control.. but then again I am not a doctor - just a mom like you searching for answers - I would love to know if you succeed in it.. my daughter has repetative thoughts and they keep her up at night and they cause her tics to worsen as well.
Jen

i dont know much about ocd- we luckily dont have it- but i would say to give it as much emphasis as the tics and treat it with as much attention- you should deffinately treat it as a factor to contributig to the tics- everything is connected. any stress and anxiety is going to be bad for tics

im sure ve sent you messages before havent i- i just cant remember your case.
i would say its good to look at the bigger picture and to see the whole problem as one big one- as everything linking onto everything else and that you treat everything as one big thing not in isolation
his negative thoughts obviously make him tics- and i really feel for him. is there no therapy offered?
it would be good if here was some proper therapy offered- like cognitive behavioural therapy have yo been offere this? or heard of it?
its about thinking of rot causes- the root cause to ocd- he anxiety and obsessive compulsions is a falsely supported belief system- if you work on changing this beleif system you work also n healing the tics anxiety etc
fr example, someone may be checking their cooker three times an hour because they believe there m ight be a fire- therapy deals witht he beleif first and ges through this- some poeple wth ocd goes and stays in special kind of like rehab houses where their belief system and behaviou is totally rehabilitated- becausevthe longer they are like this the stronger their beliefs get- the more they practise in supporting these beliefs the stronger their behavour gets, in the rehab houses they are challneged to live witout acting on these compulsions, they can only do it with proper suport as the levels of anxiety can go to the extreme. but no pain- no gain-they go through these extremes but they do discover that the house didnt burn down and they do get better.
i think its apalling that ocd isnt treated with enough therapy and is just left. i wish you al the best and hope you manage to find some help

I think sometimes my OCD can trigger tics..

I get frustrated sometimes if things aren't just right, or I don't touch something a certain way...

then I get stressed and then my tics start..

Kgore,
I have OCD and I have the 'bad thoughts' issue a lot... when my thoughts get out of control, my tics get A LOT worse. If your son is telling you that, then the docs need to take that seriously. It can affect tics so much as OCD is so anxiety provoking and we all know that tics get worse with anxiety... good or bad but especially bad. Very much so focus on the OCD to help the TS. They coincide for sure. I will answer any questions you have or your son has on OCD and also OCD with the bad thoughts. He can even email me if he wants as I know exactly what he's going through...

Much hugs,
Kris

I don't know if this counts as a "bad thought", but my daughter said her vocal tic of "hm", started because she was thinking what if she didn't talk. Then she said she started making the "hm" noise to make sure her voice still worked. That was months ago and we are still hearing the "hm" sound.

Worrying that your voice is not going to work anymore and having to check it to make sure it still works, TO ME at least, it would be under the category of a bad thought... And it also can be a bad thought brought on by a sensory feeling that happens before the vocal tic happens, from the glossopharyngeal nerve (A problematic nerve for people with TS).

Hugs,
Kris

Kris

Are you on any meds for your ocd and tourettes. Have you found any particularly helpful??

For my tourettes I've tried a few things and they have usually been patches. I tried clonidine which I thought was helping but the only reason that was, was because I was entering Syncope almost 70 times per day and falling asleep a ton... they took me off of it very quickly as it dropped my BP to 74 over 62, yeah bad. I am wearing a heart monitor for 30 days so am waiting for the next medication to try that is a patch as well... I will check the name of what it is called.

For the OCD I had been on Luvox, and that is usually really helpful even for PANDAS too. However, they believe it was not good because causing me severe Insomnia (not asleep until 3 am at least) and then it was causing some strange Harsh tics that were not good in any way. Since lowering it those two things have lessened. The OCD has gotten worse again but more the Panic and Agoraphobia, so am doing CBT with a new counselor who has some special title that has to do with neurology and pyschology to do with health conditions in your nervous system and pathological as well, meaning physically brought on. We are looking into that device as well I posted in another post so that could maybe help. I just don't know!

Hugs,
Kris

Oh, and I will soon get back to messaging you as well, just have to compile my thoughts etc.

Hugs,
Kris