Mine fluctuates from ringing noise, to high pitch eeee in right ear. My left ear will hear the high eeee though. Good luck to us all. I'm still going through the anxiety nervous tears phase... :(

I have the most insanely loud and intrusive tinnitus of all time.
1)both ears, not the same and unmaskable.
2)tones (low and high freq), ringing, buzzing, fizzing, scratching, whizzing - i still wonder how im still alive after 15months of this hell.

Mine is predominantly in my left ear. It is a very, very high pitched shrill loud eeeee. Horrible. I have it in my right ear too but it's not as loud.

First off, thanks for posting back. Hopefully others will too. This sounds horrible, and brings back some pretty bad memories for me, especially during the first couple of months.

@cfkb: I think I can help, if you're willing to try. I only ask that if you get benefit you put in a good word for the therapy.

@danny78: I'm happy to do the same for you, but please know that your case is way more difficult. I have an idea or two though if you're interested.

First, we'll need to get as close as possible to a consistent pitch of the ringing or noise:

http://www.notchtherapy.com/pages/tinnitus-frequency-finder

Take your time and try to get it as close as possible. Toggling the sound on/off with the check box really helps to home in on it.

Once you've got that, post back and (again, only if you're interested in trying) let me know what pitch your ringing is at. Don't go through the checkout process - this is good faith :)

If you are interested, there's more information at http://www.notchterapy.com, on the main page.

I forgot another question: is there hearing loss involved here? If so, in one or both ears?

Thanks again for posting back, I'm curious to hear from some other folks. In my case, it was a constant ring in both ears. At its worst is sounded like a jet engine, which was brutal.

Sincerely,
Matt Cauthorn
www.notchtherapy.com

Matt, my case is hopeless?!

No, it just came in after the other two :) Sounds like you're similar to the first post, and the offer stands for you as well - head over and post back your frequency.

--Matt

I have the high pitched, unmaskable type.

Ignoring it via distraction (movie, because you're fully engrossed) is only way I don't hear//pay attention to it.

Radio, I still hear it become it's just your ears, while your mind dwells on it.

Mine is a high tone shrill like were.
Imagine an amplifier on full with no input, just the electricity running through it. Full powered eee.
Like walking into a room and knowing somethingelectric is on but not being used.
Whine shrilling electric din of eee.

Worse than a yelling match between Fran dresher and Gilbert Godfrey.

I have a high-pitched teakettle sound in both ears. It is constant noise, 24/7. I have a roar in my left ear. It is not constant. It is there most of the time, but sometimes it goes away. I have pulsitile tinnitus in my right ear. It is there when I'm laying down. I also have a bell ringing sound in my right ear now and then. I have a low rumbling sound in my right ear. I had that sound in my left ear for about 1-1/2 years. It stopped in the left ear when I suffered a sudden hearing loss in that ear. I only hear the low rumbling sound when it's quiet.

I hear everything that goes on inside my body (e.g., my eyeballs moving, my neck muscles squishing when I turn my head, etc.), but it's really easy to distinguish what is a tinnitus sound and what is a sound of something going on inside my head. The tinnitus sounds are the ones that are screaming. :)

Oh Just Shoot you are an inspiration...I can barely function with my one shrill eeee.

Matt, if it helps I know my tinnitus is in the 12KHZ-14KHZ range.

Sue

Wow, thanks for sharing this. At its worst, mine totally dominated everything and was unbearable. But I can also now say for sure that I feel like I may have gotten lucky - it was the same pitch in both ears, and it was fairly consistent. Some of these cases sound horrific and I'm sorry that you're dealing with it.

Nowadays (2.5 years later or so) it tends to be mostly quiet and doesn't affect my life all that much unless it flares on me. This occurs when I don't sleep much, or when I stare at a computer screen for too long.

Especially now, I want to reiterate: if any of you are interested, I'm happy to provide you with a custom notch therapy track of white or brown noise, tuned to your frequency. Obviously, the folks with a consistent pitch ring will have an easier time, but I'd like to try and help the more complex cases as well. For me, it was a dramatic and life changing thing.

If you are interested, hit my frequency finder application here (requires java):

http://www.notchtherapy.com/pages/tinnitus-frequency-finder
Take your time and get as close as possible.

Then feel free to reach out to me directly via email: mcauthorn (at) notchtherapy (dot) com. Put your frequency in there and I'll hook you up and send you a download link. I've got information on the research that this therapy is based on here, as well as other info.

http://www.notchtherapy.com/
http://www.notchtherapy.com/pages/frequently-asked-questions

Don't go through the checkout process - you've been really open to sharing the information with me and the community, and I'm happy to do this for you. Hopefully it helps.

If you decide to try it (my feelings won't be hurt if you don't), I'd love to check in and see how things are progressing. It's likely it'll help, particularly for the simpler cases, and for those of us who have a frequency less than 8,000 Hz the protocol changes a bit and you can realize some significant results within a couple of weeks - this was my personal experience. Within about 4 weeks the T was beaten into oblivion, where it belongs...

Also: one study found Melatonin to be a help for 57% of the subjects (especially men) vs. the control group, so that could be a good try. Note that a larger study on Ginko showed no improvement vs. placebo...

Anyhow, thanks again, and I look forward to helping the support effort here. Horrible stuff.

Matt Cauthorn
www.notchtherapy.com

Thanks Matt, we are on the outskirts of Sandy (the storm) and my computer is hit or miss so when I am consistent I will head over and try your notch therapy. I'm technically challenged so will probably need help, you are so kind to try and help us. I will gladly pay if I find relief. Will it help with 12KHZ-14KHZ, I only ask because many of the audiologist I went to seem to think it is very hard to find relief at that pitch.
Thanks,
Sue

Sue: I know for sure that one of the follow on studies found that the frequencies above 8khz took longer to benefit from the therapy, but I don't know of any evidence to suggest that it won't help you. I'd give it a good couple of months, listening for at least 3 hours a day (or sleep with it at night on continuous loop).

That pitch is way up there for sure; the big challenge there is to get the match of your frequency - the higher end of the spectrum is logarithmic, which is to say it's harder to detect changes. This is probably why your audiologist gave you such a broad range. I'll set you up at 13kz which will cover your full range and should give you results.

--Matt

I have a high pitch squeal in my left ear and a different pitch in my right. Also, I have what sounds like a low pitch, light a ship's whistle that seems to be somewhere behind me! I know it sounds strange but that is what I hear.

I meant to say, "like a ship's whistle."

Mine used to be a hiss. Now it's a hiss with a high pitched ring (ring louder in left ear). I had so many sleepless nights before I purchased a sound pillow. I would be interested in this product, as the only thing I've found that completely masks this is "grasshoppers" which I'm tired of listening to. The frequency that "caused" this new level of tinnitus was 2 barking Chihuahuas in an underground parking garage (extremely loud--nonstop, especially with the reverberation). Wrap your mind around that sound and you might get a sense of the aftermath.