Tinnitus, Deafness and Ear Problems Support Group
This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.
I wrote to Sampson Parsons, who was the patient who had to remove the device from his head, because of no replacement batteries, and the comapny had closed down
Hi Daniel,
After my successful implant was removed (funder of the clinical study went bankrupt), I tried a combination masker/hearing aid device. As soon as I put them in my ears, the tinnitus went away. I purchased regular hearing aids because I had no need for the masker option, and now whenever I put them in my ears, I have little to no ringing. I passed this information along to the research nurse from my clinical study, and she passed it along to the other 7 participants. One of them tried hearing aids, and he had the same success I had.
I urge anyone with tinnitus to try hearing aids. My doctors think that our brains sometimes create noise to compensate for even a minuscule amount of hearing loss at any frequency. Using hearing aids supplies the brain with whatever frequency the brain was not getting from the environment otherwise, and the ringing stops. It won't work for anyone, but if you are as desperate as I was, it's certainly worth a try. You can find out quickly just by making a hearing aid consultation appointment with a good audiologist. He/she will typically allow you try "demo" hearing aids for a few days.
Thanks for writing,
Sampson Parsons
Hi Daniel,
After my successful implant was removed (funder of the clinical study went bankrupt), I tried a combination masker/hearing aid device. As soon as I put them in my ears, the tinnitus went away. I purchased regular hearing aids because I had no need for the masker option, and now whenever I put them in my ears, I have little to no ringing. I passed this information along to the research nurse from my clinical study, and she passed it along to the other 7 participants. One of them tried hearing aids, and he had the same success I had.
I urge anyone with tinnitus to try hearing aids. My doctors think that our brains sometimes create noise to compensate for even a minuscule amount of hearing loss at any frequency. Using hearing aids supplies the brain with whatever frequency the brain was not getting from the environment otherwise, and the ringing stops. It won't work for anyone, but if you are as desperate as I was, it's certainly worth a try. You can find out quickly just by making a hearing aid consultation appointment with a good audiologist. He/she will typically allow you try "demo" hearing aids for a few days.
Thanks for writing,
Sampson Parsons
Sue
Good luck Sue, hope they give you some relief.
Pat
I wish every one the best,
Sampson
A friend of mine has had great success with the Neuromonics, I hope you do too.
Sue
Hearing aids can be configured to handle many different hearing losses, and give you some TRT or masking.
They also have to be set with the right pitch tone and amplification
Er umm, don't you think the aids would have been a more rational first step than a damn experimental BRAIN implant???... Forgive my incredulity... biob
And then, the hearing aids, finished the process for him
That's a good question
Pat
"Maybe its just me but WHY did this Samson Parsons character get an experimental device mimplanted in his damn BRAIN, when simple basic hearing aids CURED his T????...
Er umm, don't you think the aids would have been a more rational first step than a damn experimental BRAIN implant???... Forgive my incredulity... biob"
Dear bebee,
Why did I do it? Because I wanted to feel happy again, and because I wanted to experience silence. And I was willing to do anything to have feelings again besides anger and sadness and frustration.
If you look at the order of events, sure, it seems ridiculous now. Its a Monday Morning Quarterback that has all the answers. I had 10 or 12 surgeries/procedures and all the drugs known. None of it worked, but I was not going to stop trying.
Right now, my brain no longer drains blood through two jugulars like everyone else because I let them tie-off and plug-up my right internal jugular vein. (I had a pulsatile component to my tinnitus, and they focused on that for years.) I dont regret any of it. Friends have asked, Why dont you sue? And I ask, What the hell for? Trying to help me?
I dont regret any risks, medications, or gigantic scars. Nor do I regret missing a green light, because it may have prevented me from a horrible car wreck. Who knows. The sequence of events in my 15+ years of brutal, grotesque tinnitus needed to happen just the way they did.
It was very, very loud.