There seems to be some relationship between T volume and vertigo (dizziness) but I've never read an article explaining why this is. Perhaps no one knows. This article said this: "People with Menieres Disease report that their tinnitus may be variable and often worsen before an attack of vertigo." Oddly (and I'm not saying you have Meniere's), your's is worse AFTER the vertigo.

I had a friend who was told he had "Meniere's Syndrome" which is similar to Meniere's disease, but not the same because you don't have all or most of the symptoms, or something like that. I've Googled it and never found what the difference is. He basically only had T and a fullness in his ears and very rarely, some dizziness. One time he went high up in an elevator in a skyscraper and when he went back down, his ears suddenly "drained" and his T was virtually gone. (He still gets a little bit from time to time.) So weird, but what a blessing!

This dude in NY talks about Miniere's, which, again, I'm not saying you have, but I thought some of the tests he mentioned were interesting--I've researched T to death and never heard the MRI with contrast dye he mentions! "The MRI with Gadolinium dye [given to the patient] specifically visualizes the eighth nerve (acoustic and balance nerve). Some older scanners can miss a small acoustic neuroma (tumor). Newer MRIs can actually visualize the structures of the inner ear including the cochlea and semicircular canals. This is most helpful. The eighth nerve can be clearly identified on MRI scan. A nerve that does not show enhancement (increase in brightness), when the dye is given, rules out an acoustic neuroma from the diagnosis."

I was checked for a neuroma, but I had no contrast dye given. Wonder how old my MRI machine was. Or maybe I had a CT? Trying to remember...

http://www.earsurgery.org/conditions/menieres-syndrome/

Ok, that sheds some light on my symptoms. The part about it being a syndrome. There is no cure for Minier's but i will research to see what is helpful treating the sumptoms. If it makes no difference then it is some thing else. Will go research it right now ! Rose

Good idea. So much of T and T-related stuff involves experimenting.

At the URL link I gave above, they do mention some treatments for vertigo and such. Maybe some could help you. Hope so....or hope it goes away on its own. Dizziness is really hard to deal with...I've had it a few times long before I got T, and it was not fun. Keep us posted on how your experiments go!

Well after resarching it, i don't have Menier's. Thank God, amazing what gratitude I feel. I did take some action today, i went to my family doctor and asked him to request the ENT specialist send my file back to him. The ENT has never given any indication that there is anything he can do so if that is the case then maybe it gives me the freedom to try again down the road with a new ENT. Anyways, it is obviously a vestebular disorder. I am on a wait list (in Canada you wait a long time) to go to a dizziness clinic. Need to hang in.It was a goal for me to try to get through September with a positive attitude and i'm almost there...thanks for your support, Rose

ENTs--ugh. Don't even say those letters around me. I went to 8 from Arkansas to Dallas and got no help or even sympathy for my T. I knew more about T from online research than most of them did! My friend and I call them "NTs" because besides tubes, IDK what else they know about ears. :)

I didn't think you had Meniere's but thought you MIGHT have that "Meniere's syndrome" like my friend in Dallas had--similar to Meniere's but not it. Glad to hear you don't have either one, though!

Would a tilt chair help with what you have? One of my clients was successfully treated with one of those--or with an alternative medicine person tilting his head in a certain way during an office visit. It had something to do with the crystals in his ears?? I really don't know much about it--just that he was dizzy and walking into walls and after one visit to her, that all stopped.

i had dizziness as well, at the beginning, after taking the ototoxic drug, gentamicine.. and after that T became my every day nightmare..I remember that i took betaserc and neurotonics .........poor us :(

2 a week! You lucky dog....do you know how you are getting these low days or are they just luck?
Sue

Hi Sue. When i think back the dizziness was the first thing i ever got.
It was mild and i mostly ignored it. Then the T hit me first week of August 2011. I could make it go away by distracting, working out, or taking baths and showers. By the second year the T and dizziness became a pattern, dizzy than loud T. Now the quiet days are fewer and farther between and not lasting the entire day. Now after a quiet day i awake at around midnight with screaming T. To add to that now when i awake here is also a humming sound started in my head. Its new and i am praying it stays at a low volume. My biggest thing right now is i am taking CBT classes to try to cope. There is no medication for T so i have to work really hard at living a normal life. Today is a new start to the week so hoping all of us have a good one !! Rose

Possibly an inner ear fluid balance disorder.

Maybe look at - http://vestibular.org/understanding-vestibular-disorder/types-vestibular-disorders

Thanks HarvestKing. That is a good website with a lot of information.
I will bookmark it. I can't get to a good ENT for a long time, i will go online and see if there is some homework i can do to treat myself. I need to reduce the hypersensitive ears and also cope with the increasing T. I am tempted to just show up at the hospital where the dizzyness clinic is held and see if they have any resourses. Just a thought...Thanks again.

You have a dizziness clinic? Yes, you should get there somehow!

Yea, i'm on a wait list - 7 MORE MONTHS TO GO??
I will try to get my doctor to prod them a bit so i can get in before spring. I know there is a connection between the dizziness and tinnitus and don't know how to stop it.

Ai yi! Seven months! Yes, get the Dr to prod if you can. Being dizzy is not fun!! :( So sorry.

I am wondering if you have a tinnitus clinic near you? Or the equivalent of The American Tinnitus Society.
I live in Seattle and a went to a tinnitus clinic at the Oregon State University. They did many tests, it was an all day thing, and was checked for all aspects of ear problems. I was told I may have a vascular problem, because they found a vein that had somehow moved and was very close to my ear. They checked me for
everything, and was finally diagnosed with Reactive T.
Loud noise brings the t up, it cannot be masked. But quiet brings the ringing down. They considered surgery, but said there were too many risks. Maybe look into the American T Association or your equivalent, maybe you can get in faster. I pray. :)

Good luck, and hugs,
Kasandra

Hi Kasandra, The American Tinnitus Association is so much better than the Canadian Association. I think because there is a population about of 35 million only here in Canada. Also the military is more progressive in the US in treating their soldiers. My problems have increased again as i have a new low sound like a hum that i awake with along side the regular hissing. Then hyperacusis and dizziness. I am challenged every day and try to make it as best i can. I no longer know what to expect so am cautious at best.
Let me tell you I am grateful every day to just be able to enjoy what i have.