Tinnitus, Deafness and Ear Problems Support Group

This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.

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Newbie here... praying for each of you

bebee
bebee
I have had tinnitus about 11 days... It was coming on I suppose. Months ago, I noticed I would wake in the middle of the night with both ears ringing loudly, but I would roll over, or get up and pee, and it would abate and I would go back to sleep, and wake each morning to silence.. Until that day when I woke to it, and it never went away... My life has become a disaster and I am unable to function much... ENT doctor as you all know , was useless..

I have high end hearing loss which is common with musicians, but still hear voices fine.. Got a 96% in word recognition in my audiology test which is extremely good, but my high end loss is very substantial.. Never missed it...Thought my hearing was ok for my age and my background of being near loud noise all my life.

Anyway, I am among you now, and am trying so very hard to cope.. I pray to the Lord that I can acclimate, habituate, or have a miracle cure..

I have been shown how many people suffer horribly, that I never realized were suffering.. I will NEVER EVER stop praying for my brothers and sisters that are afflicted.. I have been a selfish person.. my life was ok, and I thought everything was right with my life.
. I have been brought low, and will ask Gods healing on everyone, everywhere that is suffering and in despair, as long as I can think, and function... I don't know how to pray that big, but I will try..

Tinnitus is a curse that I never could have comprehended. My heart aches for each and every one of you, as well as for myself. God help us all.... I am encouraged by those that say I will cope better, or even improve some as time goes on.

I wish all of you well, and will never stop praying for you, as long as i have breath and coherent thought.. bob
Loriemar
Loriemar
Bob, Welcome to this discussion board. If you stick around and participate, you'll likely get some good support from many kind people here.

The best news I have for you is that for many of us, months 3, 4, and 5 are 10 times better than month 1, as you start getting used to the noise, and develop strategies that work for you and your particular brand or type of T. If you look through previous posts, you will see a dozen or more strategies that are working for most of us. Some varieties of T are more intense and harder to live with, and hopefully you don't have one of those.

Relax, get to know some people, and we'll help you make your way through this.
kasandra
kasandra
I think we all go though this period of sadness and a feeling of loss when we first get t. There ate many forms of t. We are all tying our best to get through the day.

Loriemar is correct there are many people here with great information and support. So welcome to our family:)
deleted_user
deleted_user
I have had it for about 10 years. I habiltuated to it finally and life was fine. Then I went to a concert and it got significantly worse so I warn you not to tempt fate. However, I have habituated to this as well as long as I am not in a totally soundless room. Then it is obvious. I am bad about not paying attention to my salt intake and continuing to have my martini at night. That doesn't help, I am sure. We all know how you are feeling especially when it first starts. However, you, I promise, will find ways that are best for you to deal with it. It will not ruin your life. Other people with chronic illnesses are in the same boat. We all learn how to cope. Please keep in touch. It helps so much to have people in your life who understand and who knows, it may decrease in intensity. If you can stop focusing on it and distract yourself in different ways, I promise you it will get easier for you.
bebee
bebee
Thanks for the comments of hope for habituation and better days in the future. I will continue to pray for each of you... bob
deleted_user
deleted_user
We all need your pray bob.
As it is recently posted time will help you cope.
As for now i see that masking works best for T.
bless yoy
bebee
bebee
Just in case no one knows about it... Youtube has a 12 hour long white noise download... Its really helped me cope at this very early stage, and i am thankful to god for the person that put it there.. Several T sufferers have commented on it with thanks.. its great while you are on the computer, or watching TV.

It would probably be good to sleep to as well. I got used to it pretty quickly...
I have found I can shock my t silent for a few seconds with it as well, if I turn it up pretty loud and back down a few times... I think the brain signals get scrambled a bit for a few seconds, but alas, they always reassert themsleves in short order...
If I am blessed with a miracle healing this very night, I will always pray for people with this affliction, and anything else like it.. I had no idea what some people must live with..
I am ashamed by that fact, and have asked foregiveness.
I ask God's blessing on each and every t sufferer everywhere on earth... bob
deleted_user
deleted_user
Bob, I don't think any of us could understand the curse this is unless they suffer from in. I've been at this 1 1/2 years and I'm to the point where I don't talk about it to anyone except the people here as outsiders tend to look at you, well me anyway, like I'm crazy...what's the big deal with a little noise in your head....as much as I'd love for them to just experience the agony so they would know what the "big deal " is, I don't wish this on anyone. I was a wreck for the first year...it was only with help from my understanding GP who put me on amtriptyline to help me cope with the anxiety and allowed me to sleep. If you can mask it,that's great but I never could find anything to mask mine. I have just learned that I have upper frequency hearing loss so I am going to try Neuromonics and hope that helps me. I hope you too find something that will help you and like you I will never ever stop praying for those who suffer from this monster T.

Sue
deleted_user
deleted_user
I as well as many others have the high pitches sensorineural hearing loss. My T started 2 yrs. ago. You had a good way of coping with it when it woke you up, you either rolled over or got up to pee, keep doing that! That's how little importance you have to put on it, although it's not always easy. I often find I dont hear my T when I am driving and thinking about other things, its then I realize I didnt notice it. You have to retrain your brain to do it, but the less you pay attn to it the better off. I wake up each day and say "Hello tinnitus, I recognize you are there, but I must go on...and I do. I have my bad days as well as everyone but have good ones too so I am hopeful that you will too!
bebee
bebee
I have read many of your comments Sugaboog... They give me hope that I can acclimate before long... No drugs at all today, but that "fight or flight" panic attack mode is always close at hand. I cry a lot, and I am a 57 yo man, that doesn't cry much...
In the past 2 weeks I have wept without control more than I had in the previous 20 years.. It actually helps...

I wish each and every one here Godspeed, peaceful days, sleep filled nights, ease of mind, peaceful, calm spirits... I have prayed and will always continue to pray each of you is cured, and if we can't be cured, I pray we can "habituate" 100%, and laugh at this repulsive hideous condition.. God bless each and every one of you... bob
zenie
zenie
thnak you Bob....am having a horrible T patch today. How I wish I could go back to where mI was 8 months age when this all started. It is worse now for me...can't even pray. So thank you for yours
Zenie
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