Tinnitus, Deafness and Ear Problems Support Group

This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.

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bebee 08/18/2011

I have had a hug or two, and some sort of PM, but I do not navigate well in these forums.. I am stuck in 1968 technology, and its all I can do to just get here.. I am a month in to this cursed "condition", and am trying to cope but not succeeding as yet.
Without some xanax before bed, I awake to screaming T thats frighetening, and I am useless the next day, with paralyzing anxiety.
When I get good sleep, the next day is somewhat easier to tolerate. i DREAD the late night T wakeups.. They set the tone for a miserable panicky next day.. Just an awful time right now..

Please Lord, may we all habituate in rapid order.
With a small shot [.5 mg] of xanax I sleep 6-7 hours, so i am luckier than some here I am sure.
I was a 8-10 hr sleeper with a 1-2 hour mid day nap just a short month ago..
I fell asleep anywhere I wanted, any time I wanted.. I grieve that loss, and the loss of the silent life in the country I have enjoyed..

I grieve the loss of LOTS of things I took for granted, like many of you.. Anyway, I have an appointment with Dr Christina Stocking at the University of Buffalo on Oct 3... I am praying for a good outcome.. She said they have lots of devices, that they demonstrate.. Neuromonics, maskers, aids, etc.. I am thinking of the Widex 440 with the Zen program, but want to discuss it with an expert.
Its 4 hours each way, but a friend from work is going with me.. Please wish me luck, If I get any relief you folks will be the first to know.. Let me assure you, I pray hard for all of you every day. I always will, even I am blessed with a miraculous cure this very day.. again, sorry I have not responded to the personal messages, I just really don't know how.. I suck at computers.

Here's my email, although I know I am crazy giving it out.. Probabaly have a Quietus rep email me with their "cure"... God bless and keep each of you as well as those you love.. bob
bullet_bob@lycos.com

loyr 08/18/2011

Good luck, let us know of the outcome its a shame you have to wait until Oct. We all know how you feel and are here for you!!!!

deleted_user 08/18/2011

Good luck! I got my T Feb 28th 2010 and the Cleveland Clinic Tinnitus Center couldn't get me in until July 28th! So either 1. many are suffering with this or 2. they just don't get the urgency of T! They were no help anyway so I hope you have better luck!! I will NEVER forget about people suffering with T as it is something, to me, that is torturous and not many people really and truly understand what a t sufferer goes thru each day. The neverendingness of it...God help us all.
Sue

bebee 08/18/2011

Suera... The Cleveland Clinic is considered one of the best medical centers in the nation.. NO help?... Perhaps they are new at tinnitus..
I just don't understand.

You would think they would have the best and brightest there. My heart aches at stories like you related... For you, me and everyone else with T.. I pray for relief for you..

Hearing clinic at U of Buffalo is suppossed to be pretty good. I will keep this forum up to date on any progress I make.. Right now, i have no joy of life, and would never have believed I could be in this much depression and anxiety every day all day..
God help us all indeed.
I am a long time Christian man, and I will never cease praying for every tinnitus sufferer no matter where they are.
I wish you all the best ... bob

deleted_user 08/18/2011

Yes that's what they always tell us. In my experience with the Cleveland Clinic (sadly many) unless it's a heart related issue I don't think they are anything special....at all.
Sue

deleted_user 08/18/2011

1) Don't panic. Stress makes it worse. 2) The early stages are the worst, things will probably improve. 3) Sleep is extremely important, without it you will spiral downward. I have taken Ambien nightly for several years. Early in my progression I would wake in the middle of the night and take more. I don't have to do that anymore. For me sleep was the most important part of getting some relief. Avoid naps at all cost. Go to bed exhausted. 4) Stay busy, use masking tracks, have some background noise on. 5) Did I say don't panic? You're stronger than you think. Hang in there.

deleted_user 08/19/2011

The first stages of T are always panicky and anxious. That goes away with time when your brain begins to habituate to the noise. Ive had T for 2 yrs. and know now that its here, its just a noise, its not going to kill me, and I move on. It takes time to get to this point for all of us but it usually does arrive. Hang in there.

deleted_user 08/19/2011

I have had T for 30 years.......Yes, I did tune it out for the most part but it has been extremely loud now for the last 4 months. The middle of the night is the worst but I sleep with a fan on and that helps. Has anyone experienced dizziness with it? Good luck Bob and I will lift you up in prayer....susie

deleted_user 08/21/2011

Hey susie... Re: dizziness....

I'm also a long-time T sufferer...24 years now. I'm well habituated, but recently had a flare that really increased the pitch and volume. I also experienced a new sense of "fullness" or pressure in my ears, along with some lightheadedness and the sensation of the room spinning a bit immediately after lying down in bed. One morning I woke up and had trouble opening my mouth normally and my jaw was really sore on the right side. AHA!

Well, long-story-short... the jaw inflammation made me realize that I'd been clenching my teeth in my sleep. I've had a few episodes of this over the years, but this was the first time it crept up on me like this, and the first time it ever affected my T. After a few nights of wearing a bite guard, all the symptoms of dizziness, ear fullness, and increased T pitch are resolving. YaHoo

So, are you clenching or grinding your teeth?

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