Hi,

When I first got the T, last Feb., the pitch and volume was always high. In the last 5 months I do get days where both are low and a much, much more tolerable T. This I can "learn to live with"....the high/shrill like today....ugh...very, very difficult. Can't mask it. I have tracked everything from food to weather and cannot give an explanation for why it changes...I wish I knew as I do whatever it took to keep it at the more reasonable pitch/volume.

I don't know what the paragraph in that book means.

Sue

Hi Patty as far as i know ... all Tinnitus is generated in the brain after a t ime and not from the ear.. it usually starts as an ear problem and then somehow migrates to the brain where it becomes hard wired .. every bodys T is different as you know .. mine follows a cycle of maybe around 5 or 6 crappy loud days and then a couple of managable ones .. ive given up trying work out the why's and how's ... it is what it is ... totally predictive or un predictive .. go figure ..
i have read that book by Hogan and all it did for me, was to confuse me even more .. take care Micky

I get three levels of sound. The lower sound I get sounds like a generator or air compressor is on. The medium sounding pitch is like the common hiss or ocean sound. I don't seem to have a problem with the annoyance of these two sounds. However, when you add the high frequency sound, this can be the one sound that has you climbing the walls. And this higher pitch sound can vary in intensity or fluctuates. I seem to be able to control this sound by watching my sugar intake. Don't ask me why... it just seems to.

Blessings

Hi, I always have pitch and volume difference. I am not sure why either. Its a high teakettle whistle that is the bad one. I notice salt does not help. I have good days tooo and they are wonderful and to be enjoyed! So I am trying everything in moderation - salt, sugar etc. I am not sure about the book. I also read it and found some good things and some things that did not apply. If we could just figure out how to keep the volume low!!!

Oh good, again I'm not the only one:) I've retrained my brain to produce a nice melody tho I don't have control over it but it sure beats that loud EEEIng. The thing is so much of the time I can't tell if the sounds are in my head or REALLy outside of it:(
I was reading the post on using medical marj and laughed as I'm anxious enough in a car on the freeway due to my meniere's so I wouldn't want to be anymore paranoid:)! I'm lucky to be able to sleep without hearing the T tho I have sleep apnea 2! Yoga and deep breathing. OMMMM!
I do find altitudes make a difference as it's better out in the desert?

Thank you everyone for sharing your experiences with me on your T., as well as the book questions.

I turly feel less islotated with this disorder chatting with you.

But of course I feel for all of you that also have T., and do not wish it upon anyone.

Pattylyn

It's not for the faint of heart, that's for sure.
Sue

That first day back in Feb I was in bed trying to sleep with the thought "What the %&#* is that noise!?!?" T was at it's worst for me. Back then when I would lay down the volume would increase every 5 - 7 seconds until reaching its high point...weird.

Three months later it is how are you doing this hour? Sometimes right as I wake up it's gone. A few times right before going to sleep it's nearly gone. Other times the ringing is very clearly present but never as bad as month #1. No reason I can figure out.

Location may not make much of a difference either...I've been on 4 continents and sea level up to mile high Denver since Feb. My vacation err research in finding the prefect environment continues :-)

Hi Pattylyn, I agree with Micky10 - I've given up on determining triggers. The only one I can count on is atmospheric pressure change. Like Micky, I'll have 2-3 absolutely screaming teapot days then a 2-3 day period of manageable (sometimes almost quiet) Mr. T. I've had tinnitus for as long as I can remember (and I'm older than dirt!) My daily prayer is for a "cure" (but I don't think there is one) or a remedy for this debilitating disease. Last November I paid big $$$ for hearing aids with maskers (I also had a high-frequency hearing loss caused by Mr. T) and frankly, I don't know if I'd spend the $6500 again. My hearing is better but now I'm not sure about the maskers. To answer your original question, yes, my Tinnitus ranges from screaming to low-pitch and the frequency is unpredictable as well. Hang in there - you will find excellent support on this board. Pat

Hello again, and thanks new comers to this post.

It sure is an odd disorder for many, here one day, at bay the next, lound, soft, hiss, ring, bells, Oh my!

Masterallan, my travels thus far to find relief for my T., has not included traveling overseas, like your travels.

Your vacation/research sounds interesting and exciting. I am assuming your main purpose for traveling is not truly to find a perfect environment, with hopes it reduces your T.? However if that happens, then what? (chuckle)

My daughter, Chelsea has traveled overseas to Kazakhstan, the flight did not bother her ears. I don't think she had severe T., then, but since after a sinus infection, it triggered her into having T. I noted about her several ear surgeries with tubes on the one members ETD thread.

I have sought out going to higher elvations, since my daughter lives in the mountains. I also live in a area near the Erie Canal, which the elevation changes to get there. My ears pop, and hurt, but I don't think it triggers my T worse nor better. I will have to examine that closer.

I have tried walks in nature, being around calming friends, more pillows, less pillows, less salt, less sugar, working out to increase my circulation, and some. Just about everything but standing on my head!But, nothing really seems to trigger, or reduce my T.. Its almost as if it just has a mind of its own. I feel I hae NO control, which makes it worse.

It does become worse, I "think" if I get upset, frusterated, or up and down doing hard yard work, lifting my grandson in and out of his car seat in the pouring rain, or my elderly mothers walker in and out of the car. if that means anything? I assume ciurculation might cause the increase, BP, but who knows.

I have now seen my family doctor, his assistant, my ENT his audiologist and my neurologist and all don't say much on the cause, aides to help, triggers to avoid, only to lower my BP, and take Vit. D, since I am severely low in Vit D.

Also calm down my anxiety. Could it really be all that easy? They all also say, just carry on.

My ENT, his audiologist, and my neuro all say they also have T. and do not appear to think to much about it.

Again, in my case I feel "worried" due to I have always had T., as I said, when tired, dieting, or very upset. But, this worsen T
"syndrome" if I might put it that way, came on one morning when I woke up, and has not stopped. WHY, why I ask...I know, nobody knows. So, was it because I have been stressed, because I cried because my dogie died after having him 17 years...I just keep thinking, what set it off. But everyday something might seen upsetting or stressful!

If it was gradual, then maybe I would not be so...so worried, but I suppose T is troublesome no matter.

Calady50, maybe we can camp out in the middle of the desert!

Thanks again. Pattylyn