Tinnitus, Deafness and Ear Problems Support Group

This group is for those coping with Tinnitus (ringing ears or ear noise), hearing loss, and all ear issues. Join to find support and get advice from others.

618 Members

3,912 Posts

0 Online

Ricepaper 06/04/2011

Thank you to all who put up posts on here. Going through a rough patch at the moment, lots of tears & I guess mourning for the loss of silence & who I used to be. Happy & pretty laid back. Would give anything a go. Now after 4 years of screaming T I wonder how I will continue to cope(I will). It 's got worse as time goes by. Totally unable to ignore it anymore. I seem to be living life in terms of how its going to affect my T. Fortunately I have more good days than bad.
On the plus side I have an amazingly supportive husband who is understanding of what I go through every waking moment as he's had ringing in his ears from concussion. Fortunately went.
Once again thanks, its good to know theres somewhere to come, to know your not alone with this horrible condition.

deleted_user 06/04/2011

Haven't heard from you in awhile, I'm sorry you're having a rough patch...I am too. Are you the person who went to cranio sacrotherapy? I remember talking to someone about that but not sure if it was you or not.

Anyway, you are not alone not that it really helps but in some small way it does....just knowing there are others who understand the torture of T.

Sue

Ricepaper 06/04/2011

Hi Sue,
As long as they're only patches we'll make it.
I did use neuromonics when I first got T. Definately helped while the volume was low. Was thinking I will give it another go even though the volume has increased.
Do you have any moments that you don't hear it.? Sometimes I find if I'm really focused on something I can ignore it for short times.
Kia Kaha
Thats Maori(New Zealand) for stay strong as we all have to

deleted_user 06/04/2011

Ricepaper, " I seem to be living life in terms of how it's going to affect my T". So darn true. I simply hate my tinnitus because thats how most of us do live our lives. So whats your overall impression of the Neuromonics program? Have heard good and bad stories about it. Since you have used it would really like your input. Thanks! John

Ricepaper 06/05/2011

Hi John,
I found the Neuromonics program really helpful when my T was at a lower volume. It does take time & you need to be consistant with using it every day. I sometimes used it up to 5 hours a day. The music I have has a very calming effect as well. There is only 4 tracks that continually run or you can select them 1 at a time. I'm going to start again & see if it will be of any use now that the T is so much higher.
I have heard that by using an I-pod & selecting soothing music that can also be helpful. Ultimately its about retraining the brain to listen to the music not the T.
So I would probably give that ago for awhile, much less expensive than the $5000.00 it costs here.
Ricepaper

kasandra 06/05/2011

Just know we are on this together and you are never alone, we have each other to hold on to. I hold on to that though every day.

God bless,
Sandy

deleted_user 06/05/2011

Seems a lot of us are going through a difficult time! Add me to the list. I've given up on singing/doing music as it just exacerbates the t, and the hearing issues. The t is manageable most of the time but I also plan my life around it. I stay in quiet environments as much as possible - fortunately I work at home, and in a very quiet area and I never much liked social situations anyway! But the music is a loss as I've been doing it professionally since I was 16 (and am now 65). But nothing lasts forever.

deleted_user 06/05/2011

No, there is never a time I don't hear it unless I'm sleeping. Do you know the frequency of your lower T and what it is now?
Sue

BluOcean 06/05/2011

Ricepaper everyone with T has a special bond that only we can understand. Yes life revolves around it is so true. It's so helpful to have support from your partner, friends and this group. You have alot of love from here. I'm so sorry your T has gone up and I'm hoping the Neuromonics helps you again. Bless you.

deleted_user 06/05/2011

We are all in the same boat which is filled with people who care. The only way to cope is to do just that. I try to stay busy with projects or people. It helps. Also, I look forward to a martini and a glass of wine at night. I know I shouldn't but I don't care. It relaxes me and helps me sleep.

Ricepaper 06/07/2011

Hi Sue,
Unfortunately I don't know the frequency anymore. its way higher than when I was assessed originally.
I have been tracking the highs & lows over the last few months & believe that theres a hormonal influence to it. Seems I am fine for about 3 weeks then 7-10 days of the tears & anxiety.
Am going to check into this. Anything that'll keep it on an even keel has got to be worth trying.
In New Zealand they don't prescribe drugs for T. I take herbal remedies that help keep me calmer

Join the Conversation