Wow. Sometimes you hear a story like that and you want to say something but what do you say about a story like that? No wonder you're depressed. It sucks big time.

I will add you to my prayer list and send you a hug.
Laura

Thank you so very much! I don't wish anyone to be ill but this would be easier if I weren't alone in the situation...ya know?

Thank you so very much! I don't wish anyone to be ill but this would be easier if I wasn't alone in the situation...ya know?

You're not alone, my ambo chasing buddy, you have us. Always.

((hug))

What? Are you kidding me? I am so sorry and can't imagine the shock you felt, the anger, and of course it IS depressing! But, that being said I want to offer you this; a lesion does not mean MS. MS and LYME present with the same exact symptoms, but LYME has a positive blood result (sometimes) and MS never will.... does that make sense. So, it doesn't automatically mean MS. Really... really really. I'm glad someone looked more closely. I have a friend who has "fibro" and has several lesions on her brain... which indicate LYME. She does not have MS, but her "blood test" was "negative" (same company that did my first negative)... she stopped searching and I am so sure she has lyme. But, she is convinced that her doctors would never be wrong or misguided. She won't look at Lyme any further than her bloodwork. Her business. Not mine... but I am so frustrated and sad.

Makes me think, though; I had an MRI a few years ago to look for causes for my sudden hearing loss. It was "fine" for that... BUT, I always tell my Drs about the MRI and tell them "they weren't looking for lesions or MS... so would they have reported that?" "Ohhh... of course they would have." Hm. Glad I have the films results on DVD. Going to give it to my LLMD to have a look at himself so that I can stop freakin asking people. Last I was there I asked his PA... not him.

That is so disheartening, I can't imagine how upset you were to learn all this. Jeez, they have to come up with a definitive dx for Lyme (that's accurate). Putting you through all this again would be unnecessary if the first dr did their job :(

Thanks you guys :o) You always make me smile!

Well they said I have two lesions but I don't meet any MS criteria? at this time. He said he wouldn't be surprised if I was dxed in the future but he isn't willing to dx me on symptoms and the two lesions??? anyway he put me on a beta blocker for the autonomic neuropathy and it is definitely helping! I guess I can't complain ...much

Hugggggggggs

Lorraine

My neuro at Hershey MS Center doesn't believe in Neurologic Lyme. He said my positive Elisha didn't count because his WB didn't show bands!! He never even took a history of tick exposure or Bull's eye rash - both of which are positive in my case! Go figure. I've been told that Jefferson and Hopkins are notorious for disbelief in Chronic Lyme. ~D`

Hmmmmmm ....don't ya love doctors? I bet he would be singing a different tune if it was he who was affected!

I'm glad you're getting some relief Rbear. I still bristle at the way thir doctor (and the ones CrazyLegs mentions) blow off neurological Lyme; it breaks my heart to know they could really help people, and because of closed-mindedness, won't.

One day, we'll see them have to answer for their bullheadedness. I'm hoping for a bit of public humiliation for them, myself....

yeah, no kidding! A bit? I hope they look like stark raving lunatics! Maybe someone will dx them with depression like they have tried to us! lol wouldn't that be a hoot!

LOL! Us Lymies could put them all in one room (it would have to be a really BIG room) and then tell them "You are all Diagnostically impaired. We think you are tired. We are quite certain you are depressed. Take these, 3x a day, become a zombie, lose your job and your self. Spend unnumbered days researching the meaning of your malady and then create a system to heal yourselves. In the mean time, yer on yer own."

Who me, bitter? Sometimes!

I think doctors probably make the worst patients. Think about it! They KNOW everything that can go wrong. They've seen most of it go wrong themselves. Personally, as much as all this stuff interests and fascinates me, there is no way in you know what that i'd be one...not that I could ever pass a test to be admittted but if I were. That said, wouldn't it be loverly (just saw my fair lady but i digress) to have one as a close friend or family member?

Lorraine - Glad to know though they were able to find you some relief in spite of their own "issues"...