Thyroid Cancer Support Group
Thyroid cancer is cancer of the thyroid gland. There are four forms: papillary, follicular, medullary and anaplastic. If you or anyone you know and love is affected by thyroid cancer, join this community to lean on the support and experiences of others.
I love having my thyroid out. I feel better than the last 10 years with it all messed up. It did take a while to get my med level right, but other than that...so much better.
I had it followed up by a drink of radiation, and I have been cancer free for almost 7 years (may 16th)...all I do is take a tiny pill every morning, and I had to get blood tests more often in the begining, but now once a year.
Even if you still get left with half a thyroid, eventually you may need a supplement. Out OUT damn spot ! That is how I feel about these questionable nodules. OUT! Be gone. take no more of my time or brain space.
www.thyca.org is the very best place on earth. You may even find there is a support group F2F in your area. Please visit them. The overall survival rates are fantastic for most types...and as always, early intervention is key. So go. do. it is a strange experience to think about, but it was liberating and I am glad I hurried up and got it over with.
Keep us informed.
Also, if the whole thyroid comes out, you lose the parathyroids too, which regulate phosphorous and calcium, so you have to take calcium and 'Vitamin D the rest of your life.
However, if they can reach the parathyroid glands (some they cannot as they are buried in the thyroid gland) they can transplant them on the sternocleidomastoid muscle in the neck. I asked my doctor about it and he said if he can, he transplants them. So you might ask your doctor.
I go in tomorrow to have my nodule removed, find out if it is cancer (right then and there) and if it is, he'll take the whole thyroid. I am at peace with this plan. Good luck to you and please come back with questions if you have them and update us too.
I HOPE YOU ARE DOING BETTER U CAN WRITE ME ANYTIME HERE TO SUPPORT ANYONE THAT NEEDS IT WHEN I CAN SIT UP ON GOOD DAYS AS I DIDN'T HAVE MUCH SUPPORT WHEN I FIRST FOUND OUT I HAD CANCER...
STAY STRONG THERE IS ALWAYS HOPE & FAITH....
((((GENTLE HUGS)))...
I am pretty sure they never looked at my genes. Hmmmmm.
I think you go in expecting the best in whatever situation they find.
Have you been to Thyca.org? did it help at all?
The waiting has got to be rediculously stressfull. I waited 7 years for a diagnosis, but I had things hurry along quite a bit once they found it was my thyroid causing all these problems.
Keep us informed