where is your pain from this diagnosis? in ur collar bone area? Im Rissa, welcome. I've had TOS that is structural for 15 years and was diagnosed finally 9 years ago!
Physcial therapy is very touchy for TOS as well. Either its just the right thing, or something to fierce that flairs you up rather then settles it down! My TOS is from my thoracic canal being pinched at the point where my left collar bone and first rib ends meet in my shoulder! I have pain and tenderness in my collar bone, neck, traps, down my arm, elbow, wrists and fingers, tingling, severe spams in my shoulderblade, left side of my neck etc....
I don't mean to be a debbie downer but just wanted to share that PT isn't very helpful and I haven't tried the botox but am very curious! In my case, surgery has a very low success rate! And tends to bring on more complications in the end anyways!
Painfree Prayers~ Rissa

Oh, I have an abnormally large anterior scalene muscle, but the pain is mostly in my arms and neck, but occasionally in my legs too. PT was very ineffective, so I will be going in for surgery to remove the muscle. How long was the recovery for the surgery, as I am a freshmen in high school.

Hi Natalie! I'm new in this support group. I was diagnosed with Bilaterla TOS due to work related injury. I had tried BOTOX but that didn't work for me. A acquaintance of mine also tried BOTOX but that didn't work for her either. I was going to try it one more time, but after hearing from an acquaintance that it didn't work for her either, I might not just get one. Anyway, it's not the cure to TOS. It is only temporary. I had surgery last year on my left side and my recovery was great. I wasn't working for I think couple of months no therapy, just rest. I was sent back to work and here I am again IN PAIN. It's weird how my left hand still swells up, turns blue, gets really cold and achy, pins & needles when my surgeon took 2" of my first rib. I get burning, achy pain in my elbow and forearm same as my right side. I'm also dealing with headaches and migraines and chest pains too. I think I was sent back to work prematurely, taken off therapy. I was told by the doctor that I'll get used to it. Anyways, Dr Johansen is a great doctor and I"ve heard so much great things about him. Someone did my surgery. I would like Dr Johansen to do my right side. I tried BOTOX, unfortunately it didn't work for me. It does work but I have not met anybody yet that it did worked for them. Maybe, if you've had TOS for so long chances of a BOTOX success is low. Not sure. But I was not one of the lucky ones. I'm hoping to see Dr Johansen soon. You take care and let me know how things are going.

Please ask the dr what the % of positive outcomes are after surgery! I've had TOS for 15 years and have never had surgery! I've been told by several drs that TOS surgeries are experimental! They were going to remove my first rib and cut off the end of my collar bone on my left side! My dr had one patient who was in 10 times more pain after surgery then before!
Just please do more research before jumping into surgery, it often is not a cure all and could likely cause more problems in the end by causing adhesions!
Good luck!

How is everyone doing now? My daughter was just diagnosed with TOS.