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I'm sorry my last post was so incomprehensible..
I'm really feeling beside myself.
Elijah went to their neighbor, just as he has been taught to do, and said something was wrong with his Mommy. She called 911 and my son. He called us. We went immediately to ER. She wasn't there. They said they were trying to stabilize her for transport. We went to her apartment. ( small town.. everything minutes apart. Ambulance/her..gone. Back to ER. Not there. They called911 and found out ambulance was taking her to airport to meet air light to Sparks hospital in Fort Smith. On the way to Fort Smith, ER called to tell us they had deverted her to Mercy Hospital in Fort Smith.
When we finally caught up with her at Mercy ER.. they said she had had at least three seizures..running so close together as to be like one. And.. that, if they continued to be unable to stop them.. they would have to put her so deep into a comma she would stop breathing, and so, need to be intubated and on ventilator.
I kinda lose track of things at this point. ( we still didn't know if she was stroking, as well, again. Catscan.. no bleed.
By the time they moved her to ICU.. the seizures had stopped.
Last week, when I mentioned things going from bad to worse.. it was because..this new Neuro had given Jaimies permission to drive ( not supposed to happen until she went through a specific PT/OT... and, worse.. ( his "plan" for helping her headaches that she has had since before the stroke/aneurisms... taking her suddenly off of three meds.. including..Keppra, Gabapentin..damn it..can't think of the other anti seizure Med.
I BEGGED Jaimies not to stop the meds ( he gave her only depakote(sp) to replace those meds. Oh.. and stopped baclofen abruptly, too. I pleaded repeatedly with Jaimies to wait until after her appointment with her GP this week, and talking with the pharmacist first..
Because NOT ONE of those meds should be stopped abruptly.
She wouldn't listen.. because she wanted this Dr to be right, because he said she could drive.
I even told her.. truthfully.. if you get a seizure from stopping these meds.. they will have to report it to DMV.. and then, no therapy will get you allowed to drive for a full yr seizure free.
She HAD NOT HAD ONE SEIZURE..EVEN THROUGH HER STROKE prior to this.
Her aphasia is decidedly more pronounced. She is very confused. She has a repeated spasmjerk in her shoulder/neck head that she didn't have. Only time will tell if these are temporary or permanent results of the seizure.
Having now had seizures.. she is more apt to. As well as even more apt than the very that she already was to stroke again.
I've been typing this forever and can't remember what all I've said.
Hope I caught up on questions.
I can't tell you how very much each and every one of your heartfelt concern ( and each of your unique ways of expressing it :-) .. means to me.
I feel pretty crazy, to tell you the truth.
Today..
Danny and I will go and do Elijah and Holden( his/my other grandsons) kidergarden orientation. My daughter should be there. I know I will.. but don't know how I will.. get through that without breaking down.
I try not to cry in from of Eli..
And, he saw me literally collapse onto the sidewalk in front of ER when they told us they were lifeflighting her again.
My Mom, Sis, ans SIL were all ready to come here immediately. I've told them to wait. Because we cannot know when the next,possibly worse, emergency will be.
Somewhere in all that.. my DR had set up two ultra-sounds having something to do with the lymphoma she's testing for.I missed those yesterday, obviously..and don't know when the biopsy/s will be.
Not all awful enough?
We hit and killed a dog on the highway on the way to Jaimies yesterday.
Silver lining..
My son is back on his meds..
And has stepped up into helping with Eli.. and actually worried about me.
I'm sorry this is such a ramble. I don't know why my computer " fixes Jaimie's name to Jaimies..it is Jaimie.
I love you guys.
I feel so.. desperate..
And felt to grateful when I came on and saw your resoinse here
I CAN'T " lose it" now. I just can't.
You guys really are a lifeline
Luvnhugs
jc
I'm really feeling beside myself.
Elijah went to their neighbor, just as he has been taught to do, and said something was wrong with his Mommy. She called 911 and my son. He called us. We went immediately to ER. She wasn't there. They said they were trying to stabilize her for transport. We went to her apartment. ( small town.. everything minutes apart. Ambulance/her..gone. Back to ER. Not there. They called911 and found out ambulance was taking her to airport to meet air light to Sparks hospital in Fort Smith. On the way to Fort Smith, ER called to tell us they had deverted her to Mercy Hospital in Fort Smith.
When we finally caught up with her at Mercy ER.. they said she had had at least three seizures..running so close together as to be like one. And.. that, if they continued to be unable to stop them.. they would have to put her so deep into a comma she would stop breathing, and so, need to be intubated and on ventilator.
I kinda lose track of things at this point. ( we still didn't know if she was stroking, as well, again. Catscan.. no bleed.
By the time they moved her to ICU.. the seizures had stopped.
Last week, when I mentioned things going from bad to worse.. it was because..this new Neuro had given Jaimies permission to drive ( not supposed to happen until she went through a specific PT/OT... and, worse.. ( his "plan" for helping her headaches that she has had since before the stroke/aneurisms... taking her suddenly off of three meds.. including..Keppra, Gabapentin..damn it..can't think of the other anti seizure Med.
I BEGGED Jaimies not to stop the meds ( he gave her only depakote(sp) to replace those meds. Oh.. and stopped baclofen abruptly, too. I pleaded repeatedly with Jaimies to wait until after her appointment with her GP this week, and talking with the pharmacist first..
Because NOT ONE of those meds should be stopped abruptly.
She wouldn't listen.. because she wanted this Dr to be right, because he said she could drive.
I even told her.. truthfully.. if you get a seizure from stopping these meds.. they will have to report it to DMV.. and then, no therapy will get you allowed to drive for a full yr seizure free.
She HAD NOT HAD ONE SEIZURE..EVEN THROUGH HER STROKE prior to this.
Her aphasia is decidedly more pronounced. She is very confused. She has a repeated spasmjerk in her shoulder/neck head that she didn't have. Only time will tell if these are temporary or permanent results of the seizure.
Having now had seizures.. she is more apt to. As well as even more apt than the very that she already was to stroke again.
I've been typing this forever and can't remember what all I've said.
Hope I caught up on questions.
I can't tell you how very much each and every one of your heartfelt concern ( and each of your unique ways of expressing it :-) .. means to me.
I feel pretty crazy, to tell you the truth.
Today..
Danny and I will go and do Elijah and Holden( his/my other grandsons) kidergarden orientation. My daughter should be there. I know I will.. but don't know how I will.. get through that without breaking down.
I try not to cry in from of Eli..
And, he saw me literally collapse onto the sidewalk in front of ER when they told us they were lifeflighting her again.
My Mom, Sis, ans SIL were all ready to come here immediately. I've told them to wait. Because we cannot know when the next,possibly worse, emergency will be.
Somewhere in all that.. my DR had set up two ultra-sounds having something to do with the lymphoma she's testing for.I missed those yesterday, obviously..and don't know when the biopsy/s will be.
Not all awful enough?
We hit and killed a dog on the highway on the way to Jaimies yesterday.
Silver lining..
My son is back on his meds..
And has stepped up into helping with Eli.. and actually worried about me.
I'm sorry this is such a ramble. I don't know why my computer " fixes Jaimie's name to Jaimies..it is Jaimie.
I love you guys.
I feel so.. desperate..
And felt to grateful when I came on and saw your resoinse here
I CAN'T " lose it" now. I just can't.
You guys really are a lifeline
Luvnhugs
jc
I really am out of it
i hope the new problems will be temporary and minor.
seriously, this guy needs to lose his license. he's a nutcase and a dangerous one at that.
i hope you can find the strength to make it through the orientation today. i'm wondering if eli will take this very well with his mother in a unknown situation. i hope not and that it will give him some nice kid to kid time. wishing you the best with that and getting through all this.
much love and hugs, dearest jc
My heart aches for what you and your family are going through. I pray for healing for Jaimie. About all I can do. I wish all of us lived closer. Big, gentle hugs.
My prayers are with you all as you go through this nightmare
I wish I could be there just to give you a hug and hold your handhand. Know I'm here if you need anything.
Love you dearly
Mary Ellen
My friend always keeping your family close to my heart. The Silver Lining is a good one.
love and hugs
hippy
It is painful to read what you had to go through and it is heartbreaking.......this is just reprehensible.
We are the circle........we surround you........we encompass you.........
Through all of this though Eli has proven what a hero he is. Crying is allowed from you so he knows it is allowed for him too. Even heroes need to let those emotions flow and he has one heck of an example to follow.
Keeping you close always....with much love.....
Toni
Love n peace
Michael
THINGS JUST KEEP GETTING! IMPOSSIBLY! WEIRDER?
JAIMIE IS BEING RELEASED THIS A?M?
??AFTER WE WERE TOLD YESTERDAY SHE WOULD HAVE TO BE ANOTHER 24 - 48 hrs
Without any seizure activity before release.
Opps.. didn't mean to capitalize that.. not going to retype.
She's being very difficult..
Getting up without support ( alarm on her bed)..
Saying she's leaving AMA ....
So..
We're working with them to release her to us before she does anything more detrimental
( if she leaves AMA.. she will be billed for EVERYTHING..
Ambulance, Lifeflight , ER...........
And.. will destroy a pretty much hands down lawsuit.
.. she actually conned her brother into " bringing Eli to see her" after we left last night.
... and then, somehow.. got the staff to let him " take her to the cafeteria"..
Which, of course, meant outside to smoke.
( I had already warned Danny that her wanting Eli the.. whether real or not..
Was her manipulating getting a smoke.
So..
We know her thinking is clear enough for all that.
FML ( Toni.. that doesn't stand for fun, my life :-)
She has, supposedly, agreed to stay here for a while..
But..she's pretty much beyond our controlling her actions.
I think we're going to have to get her put under our conservatirship..
Whether or not she'll ever forgive me.
Weird thing about when she had her seizure..
Elijah was only to be there fro..I think around 3.. until Douglas picked him up after work.
For some reason..he came home around 5 - 5:30..
He's NEVER home before 6:30, and often quite later.
So.. he came home before picking him up, and Danny was going to bring him in a while
( I'd been clear to Jaimies that, if she drove with Elijah in the car..
We would enforce our legal gaurdianship of him)
Anyway..
She would have been alone if Douglas had picked him up on the way home.
As not good as it was for Eli to see his Mom like that..
If he hadn't..
She very likely would have died.
We have taught Eli, reoeatedly, what to do if his Mommy wasn't well..
And he did exactly as he should have.
We're going to have a " hero" party for him in the next couple of days.
Today is my sons 31st birthday.
His choices, due to his mental illness, have put his life in jeapordy on several occasions in thepast..
So, today, I am grateful for him.
( I'm grateful for all my kids n grandkids all the time..
I'm just trying to focus on something positive.
I live you guys..
I'd be lost without you.
Hugs
jc
I don't think I'm making any sense at all.
She is fortunate the string of events lead to her rescue. Good little hero
I do hope you are breathing....
Circle of love