Syringomyelia Support Group
Syringomyelia is a disorder in which a cyst or tubular cavity forms within the spinal cord. This cyst, called a syrinx, expands and elongates over time, destroying the center of the spinal cord resulting in pain, weakness, and stiffness in the back, shoulders, arms, or legs.
Those pre-teen through teenage years can be rough when you're healthy and I feel for you. Do you take pain medication for your symptoms? Do you have any pain medication?
My doctor gave me pain pills in February but I did not want to take them unless I was in excrutiating pain. Now, I take a half of a pain pill before I get out of bed and then I take the other half around 1:00 PM. I take Neurontin before bed. I am still in pain but it is tolerable.
I hope you get your pain under control because I think that will make a major difference in you life.
My hubby feels that a lot of it is I am an alpha female and our daughter is challenging that. We adopted her when she was 5 and he feels that she has a lot of anger and hostility toward her birth mother and so she takes it out on me by challenging me. I'm starting to think he's right and it's not just me if he's seeing this.
I pray that both situations get better. Thanks ladies. :)
The pain is insaine and even positive or normally excting news/events are too much to handle. That's the fight or flight nerves being effected...why we are so irratible :-(
Am trying to find a way to nourish my body or stop/slow the progression. Unfortuantely nothing is working and I am again stuck with this question~ Do we want to calm the nerves, foods out there can help??? or do we want to energize our systems???
Will Gluten Free, Paleo, Rainbow Foods, Complete rest help us???
What do you do when you get axtra irratible???
Anything I try meets me with negative results. Strength to us all!!!