I haven't and it's not on the symptom list. Go to ASAP. org and read symptoms. Hope you'll be okay... Angel

if you look at asap.org you will see that a chiari malformation a related condition to syringomyelia may have vertigo or disequilibrium as a symptom. That is why I was wondering if anyone else had similar experiences

Since my surgery I have had more episodes of loosing my balance and even almost falling when walking or riding a bike,I just thought it was me being more of a clutch,then agian maybe not.

Surgery has not been recommended for me as of yet. I have always been sort of clutzy I guess but over time the dizziness has gotten worse.

I guess I should rephrase what I said earlier,I did have dizy spells before my surgery but I just thought it was a inner ear problem with all the sinus problems that I have.My NS asked me if I had been having balance problems and I was.
Cheryl if it has gotten worse I don`t understand why your NS hasn`t suggested that you have the surgery,My NS said that combined with all the other problems that I was having along with the dizyspells was a determining factor for me to have the surgery ASAP,so I had it the same year that I was diagnosed.
Before I started to have serious problems I didn`t have any dizy spells and was going to Martial Arts classes 5 times a week.

Well my dizziness wasn't anything that bothersome to me until the last two months or so. If it persists I am going back to my neuro here and see what he says (I am hoping he will recommend new MRI of my brain since in may they only did the cervical spine) and then I may end up going back to UCLA to consult with a neurosurgeon.

Hi, I was diagnosed about 5 years ago.. and I have all the symptons everyone is talking about, but about 2 months ago,I was getting dizzy, even when laying down.. I went to my GP and she said I had Vertigo...She gave me pills to take when ever I got it.. Also I was told this cyst is caused by Cancer, trauma or born with it... I got it from my dad wen he beat me at 6 weeks old...

yes i get dizzy among other things, was recently dx with menieres disease...not fun dizziness ,nausea vomiting passing out cant stand up some times loss of balance. i have fibro but this is something totally different...it first hit me driving home from the doctors of all places...you may want to see an ent or more thoroughly a neurologist..good luck hope you feel better .

I do have bouts of dizziness and nausea.I have been to ENT about five years ago for recurring sinus infections and he did surgery on sinuses and i still get dizzy.I think the syringomyelia can cause dizziness in some people.I also see a Neurologist and he also stated i have Occipital Neuralgia and that is why i have headaches and pains in back of my head almost daily.So to me i think the dizziness is caused by this disease.

I suffered from nausea and dizziness for 9 years prior to my diagnosis of SM
I lost over 100 lbs with all the nausea and dizziness even tried Serc for the dizziness which worked for a while but then it did nothing for me. Saw the ENT had test over test found had hearing loss and that my vertigo was not being caused from my ears yet my neurologist at that time could not explain why I was soooo dizzy. Still have boubts of dizziness and nausea daily only it includes ringing in my ears now which is all day everyday but no answers as to why my current neurologist can't answer it but when i get a solid answer I will be sure to pass it along

I get the ringing in the ears to and it is daily..I also have syncope which is when i go from a sitting to standing position my blood pressure drops and my heart rate jumps up by 20/30 beats just by doing this,So now i stand up very slowly..LOL dx'd with the syncope in 2001.I get dizzy daily as well along with the occasional nausea but i also get sweating with it..I was wondering do you get the sweating Lori???

I have terrible bouts of dizziness. I've also been recommended to go PT for it. I've been on Antivert etc for vertigo but nothing seems to help. Sorry for your symptoms, but glad I'm not alone in this!

Hello to all of you, I have dizzy spells, headaches, blurred vision, ringing in my ears for 10yrs now, I was treated for everything from sinus's to eye's, and low blood sugar. None were right till I went to a pain clinic and had 4 MRI's the doctor found the cyst at the tip of the spinal cord and base of the brain stem.
My NR said, my illness all these yrs are from the syrinx. I had gotten a cold June and July this year, a terrible cough which force fluid into the cyst. The last MRI showed the spinal cord misfiring 17 times in 20 minutes. I go to the Mayo Spine Institute on Dec. 12th to see what can be done. My doctors here in Meridian MS haven't told me anything except be careful, don't stress, take pain med's and don't drive. Its a scary time for me and my family. I notice I was getting worse as my 10 month old son is getting heavier too. He only weighs 18 pounds but by afternoons I am down with a lot of pain. If any one knows what we are suppose to NOT do please tell me. I just found out about the syrinx Aug 28th. so I am afraid and sure looking for friends who can help me with a little knowledge of anything on Syringomyelia. God bless you all for being here for all of us new comers. I really appreciate your help. Wanda

I did a lot of research on different herbs you can take. The things that are available like Syrotab $79 and this same company claims they have clinical research to back up proof that it help with syringomyelia. They also have 2 other products one is a $100 one is $69. If you click on the clinical proof they tell you "coming soon". Always check out the reviews from other people who tried any product. What I found was this company has claimed this is good for any and all diseases you can ask about. I like you am looking for anything that will help me. I was a manager for 9 years of GNC health food store. The review claim it does nothing for our symtoms. Since 2007 this one guy said "he clicked on there sight and it said way back then COMING SOON too.
I actually was going to purchase it but decided to keep my money till I do find a product that will work. I believe there are herbs that will help. I just want to make sure it is what its claimed to be. I also noticed while reading some of the post here on the support group a couple of people actually take the Syrotab. Maybe they can tell us if it has helped any.