Support and Chronic Pain Community Group
Welcome! This room is for CP/IP survivors. This room promotes fun, family, support and compassion. No Drug Seeking Posts or Promoting of such activities are allowed here. Please, No "F" Bomb--keep swearing to a bare minimum. No posts that are "fighting" with another person/group on this board or another.
Lord, if this is taking place in Idaho too this isn't a good time for me at all! I am reassured by a letter my obgyn wrote to the pain management doc though! It is very informative and very much in support of my needing long term pain managment! He even makes reference to how terrible my current doc is treating me and how he agrees Im in desperate need of a caring doc! I just re-read the letter again and actually know now everything wrong inside which is nice! I only knew of part of it and actually didn't know how bad it really was til reading thru the copies of my entire medical chart from my ob! He is the one that did my adhesion lysis last May and no wonder Im still in pain, his surgical notes say he couldn't remove over 80% of the adhesive disesased area!
Grrrrr, I really hope that this isn't true nationwide! Well, I guess I really hope the pain management clinic accepts me as one of the chosen few to remain a permenant patient at their office. I've been told several times that the only thing they do is make reccomendations, get me on a stable dose and proper cocktail of meds to manage my pain and then I must have a PCP to return to who is willing to continue to rx what the PM office has me on!!!
We all need to be writing our congressmen!!! Or, move to Florida to join Tipper!!!! lol Hell ... what a life we lead! Everyday another piece of bad news that makes ya wanna just give up!!! Sometimes I think that is really wasn't that bad living without pain meds, it seems that my stress levels are extremely higher then ever while continuing to battle just to get the damn things!!!
Well, all we can do is pray and prepare! My appt with the actual PM office here is wednesday and God willing, he'll hear my cry and accept me permenantly into their office. I can't imagine doing this all over again a few months down the road!!!!
Prayers for all of us,
Riss
I am very curious to know what the meds are and at what amounts. I am (hopefully) going to be moved up to a stronger med.....but I don't want to start something that I cannot continue on later....my PCP is going to start my meds. At this point in time, I refuse to see a PMD because they only want to guinea pig me.
I will start research and see what I can find....thanks for any further info and for this original info!
Thanks for the heads up though!!
http://www.blueridgenow.com/article/20100729/ZNYT04/7293012?Title=Move-to-Restrict-Pain-Killers-Puts-Onus-on-Doctors
Lord, what are we supposed to do??? This really stinks.
"The panel is expected to require that, among other things, doctors refer patients to a pain specialist for review when their daily medication increases to a specified dosage level and they do not show improvement. The specialist can then determine whether to continue the drug, reduce it or use other treatments like physical therapy....
Pain specialists and regulators in Washington State said they thought the requirements were essential because doctors were giving high daily dosages of powerful drugs for ailments like back pain for far too long without evidence that the drugs worked."
While I agree if a med doesn't work after increasing it a few times it should be stopped but that doesn't mean another drug shouldn't be tried. PT, I am so sick of PT. There is just so much PT can do in many cases. I believe quite a few of us have plateaued out of PT or it has made things worse. Insurance companies know that, that's why they limit the number of visits they will pay for. It seems based on the article, if a med doesn't work then it's PT for you.
Since most of us are seeing PMDs, I don't think it will effect many CPs. Just have to wonder how many on this committee either are themselves PMDs or have connections to the PM industry and are just looking to make everybody get another doctor = the big bucks for them, higher copays to us.
@Leeall, what do you mean the PM clinics don't prescribe? What do they do?
Everything about this pisses me off! One Dr. basically states that he believes that anyone with cancer deserves ALL the pain relief that they need. (well OF COURSE they do) but so does ANYONE in pain!
I also think that there is a HUGE conflict of interest to have an advisor of this change, also working closely with the addiction community! Talk about one sided opinions!
Ok..mad and tired again - off to bed.
Thanks Chronic for the article!!
He would take me back and I respect him however I finally have a doctor that spends a lot of time with me, is looking at all aspects of my health as RSD can affect people internally and she is trained to do pm as she took some anesthesiology classes in Med School so she could understand pain patients better.
I have a pain contract with her just as I would with a pm doctor. My meds changed but is being controlled very well.
Please give us any info you can & thank you for letting us know
Peace to all!
For example, last year, the DEA changed the rules (through an open rules-making process) to allow doctors to write up to 3 prescriptions for a Schedule II medication at one time for an established patient: one to be filled immediately, one to be filled no earlier than 30 days from now, and one to be filled no earlier than 60 days from now (each script has to be dated the day it is written with an annotion of fill no earlier than XX date as appropriate). This was done to make it easier on both the patient and the doctor, reducing the need for those monthly visits to the doctor, as well as the extra time and expense, especially in light of why many patients need the Schedule II medications to begin with (to make the appointment and actually get there safely and then on to the pharmacy can take hours or even days depending on availability of transportation, physical condition, etc. (not to mention the ridiculous added expense of a medical visit for the purpose of getting a script only). And more recently, that 3 script process has been extended to electronic prescribing, although not all systems are designed to accept this type of prescribing because it's NOT a refill, it's a new script each time (and not all systems accept a script to be filled no earlier than 30 days from now).
But that's the federal rule; the states can make it more restrictive (and/or they haven't caught up to the federal rules or they prefer to be more restrictive). So as patients we need to know the federal rules, state rules, and in some cases, city/county rules as well.
It's important to understand that the DEA (federal) is not out there targeting patients or doctors who are obeying the law; they have much too much on their plate than to single out individuals for entrapment (which is illegal) or surveillance. So the next time your doctor, any doctor, blames the DEA for not being able to do something, ask them to show you where in the rules it says so--in writing! If they're so in touch with how the rules work, they should have the handbook in their office and be able to provide you chapter and verse for why they can't do something reasonable. Force them to do the same when they claim that oxycodone in any form is being discontinued (it's not; it's just a convenient excuse for being lazy) or there is no equivalency chart for OxyContin to Morphine (there are infinite equivalency charts, especially as all narcotics are measured in morphine equivalent doses!).
I wish everyone a pain-free day! :)